Phoebe started her 9th round of chemo today. This round is the same as the last; one push of chemotherapy through her port this morning, followed by oral chemo each night through her ng tube (here at home) for 5 days, and four weeks until her next chemo. This was a pretty uneventful round the last go round so I am praying for the same this time. Her hair has started coming in and she has the sweetest little downy fuzz all over her head. Our oncologist said it wouldn’t be like that for long because she starts the “hard stuff” again on round 10. That reminder was deflating to say the least. It has been so nice to have a semi-normal life these past few weeks, with lots of time at home and very few ER visits. I wish we were in the home stretch…I wish she was done with Doxorubicen..the worst of the worst. But on we go..
I don’t think I’ll ever get past how wrong it feels to inject poisonous medicine into my daughter. Tonight when I was administering her chemo through her ng tube I was again overcome with how counter-intuitive it is. Catch 22.
Phoebe has been so sweet lately, singing and laughing at her brothers and cousins, enjoying herself. It’s been good for my soul, for everyone’s. Her at-home physical therpy sessions have begun and yesterday Phoebe crawled over to the couch where her Grandad was sitting and STOOD UP on her feet! COMPLETELY unassisted! Nathan yelled for me to “hurry!” and I couldn’t believe my eyes when I saw her! She was tilted to the side and unable to bear her full weigth on her left foot since it turns in badly, but she had taken the initiative all by herself and pulled herself up! So today during her physical therapy session she did lots of assisted walking and pulled herself up tp standing two more tmes. I am so proud of her. She is working so hard, and at last it feels like walking again is within reach. I am thanking God for the small, everyday miracles….they are a lifeline for us right now. Progress of any kind, means so much.
The other day we were at Barnes N Noble and Nathan caught Phoebe in one of her “moments” when she burst out in song. We thought you would appreciate seeing her in all her glory. And nevermind my jabbering in the background. I didn’t realize he was videoing at the time.
and here are a few recent pics….
The Dallas SWAT team signed this poster on the wall and had it framed and sent over for the boys. They LOVE IT!
Phoebe and Mommy fall asleep..
Deacon and Phoebe share a book at Barnes N Noble..
Thank you all for your continued prayers and support, letters, e-mails, care packages…we are blessed to be loved and cared for by so many.