~Octobers~

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The first week of last October we said goodbye to our Phoebe Lucille. I can still see her sweet, chubby little feet in those pink, sparkly sandals. The first week of this October, we will welcome baby Fair #5 into our family. Will it be a girl? I don’t know, I just used some of Phoebe’s baby doll shoes for the photo :) This might be the only authentic “We’re expecting!” message you read today on April Fools…but I assure you, it’s no joke. Looking forward to what’s ahead for our family.

~ Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

53 responses »

  1. Ccongratulations!

    Sent from my iPhone Cheri Perry 1-888-249-9919 You can get everything in life you want if you just help enough other people get what they want. ~Zig Ziglar 1927-2012 Rest in Peace dear friend!

  2. Congratulations and Joy ! I had a feeling before opening this entry that you might be sharing news of a new little one. That is wonderful news !

  3. We think of and pray for your family often. We are so happy to hear of this exciting news! Prayers for a healthy pregnancy and navigation of the many emotions and memories that have/are/will be relived along the way. Phoebe was a miracle and a gift. This baby is another miracle and gift. Congratulations! God is good!

  4. I am beyond delighted to hear this news!! Your family will be blessed in many ways by this new child, boy or girl. No one will ever replace Phoebe, but I’d like to think that perhaps she and God together chose this coming addition…it makes me smile!

    oxox

  5. God is so good! He is continuing the Fair legacy and bring new life into your home that has days of darkness. Baby #5 is a new gift, so different from the gift in what He has shown you in Your journey with Phoebe, I know it does not take away those feelings of loss though that you experience! Phoebe has touched so many of us that you don’t know as have you! She will be smiling down on her new little brother/sister and watching over them as well as you. May this time bring a newness of peace and love into your home. I will be praying for a good pregnancy and this newest blessing!

  6. Congratulations! Bless your heart… Phoebe is sending you a very special little angel to bring you joy and love. Be happy, as she would want you to!!! God bless you and the entire family… and God bless that precious new baby that will be arriving. We look forward to updates…and pray for you to have an easy pregnancy!

  7. So thrilled for you! My heart did a little swoon when I read this! You don’t know me Amey, but I’ve followed your journey from the beginning and fell in love with Phoebelicious. I am so happy for you and the boys! What a blessing from God! Thank you for sharing this with us all, and you know we will be praying and looking forward to this new little bundle of love!

  8. I was certainly surprised and overjoyed by your post. So happy for your sweet family. I haven’t forgotten about you all returning to Breckenridge one day. I’m sorry I didn’t follow up with you more this winter. My little brother came to visit me and was in a horrible skiing accident and I was in Denver at the hospital most of the winter. Thankfully, he made it and is back home now. Please keep in touch and thank you for the nice postcard you sent us. Love Lauretta and Toby with Resort Managers

  9. Congratulations! Your new little one will have a spectacular angel looking out for him or her. He or she won’t ever replace her, but I am glad you will have a good event to remember October by.

  10. That is wonderful, I am so glad to hear you are expecting, and I wouldn’t be at all surprised to find out it is another girl. Blessings to you and Nathan and your boys! It’s time for some good news!

  11. What an absolute blessing God has chosen to bless your sweet family with…my heart was just so full of love as I read and then re-read this beautiful message…Amey, please know how happy our family is for you and your family!! Because of Him, Elizabeth

    Sent via the Samsung Galaxy Note® II, an AT&T 4G LTE smartphone

  12. phoebe will love watching over her new brother or sister. Congratulations. hopes for giggles, laughter and memories to be made and memories to be shared with this new gift to come.

  13. Congrats, Amey & Nathan!!! Praying that God continues to fill your home with joy and blessings. Someday soon you’ll get to wrap your arms around little Fair #5 just like God wraps His arms around you & your family. Phoebe will always be your guardian angel. God bless y’all!!

  14. I am so happy for you and your family…GOD has blessed you guys with another miricle.

    SHAWYN D. HAYNES Court Services Assistant III Downey Superior Court Administration 7500 E. Imperial Hwy. Rm. 114 Downey, CA 90242 (562) 803-7057 SHaynes@LASuperiorCourt.org >>> An Atypical Miracle 4/1/2014 7:29 PM >>>

    Amey Fair posted: ” The first week of last October we said goodbye to our Phoebe Lucille. I can still see her sweet, chubby little feet in those pink, sparkly sandals. The first week of this October, we will welcome baby Fair #5 into our family. Will it be a girl? I don’”

  15. What a beautiful gift from God! If it is a sweet baby girl, you should consider naming her “Lucy”. The name Lucy means “light” or “bringer of light” And this sweet baby will be a new bright light for your beautiful family. It would honor her big sister. Good luck with your pregnancy…My little LUCY and I pray for you all often (all the way from Louisiana!)

  16. Hooray!!! Congratulations and prayers for you! Thank you for continuing to share your faith-filled journey will all of us near and far. Love and hugs.

  17. Overjoyed at your news of another precious little one on the way! Trusting as the healing continues that he/she will be a continual reminder (as I am sure your boys are) of God’s miraculous love for you all. We will be praying for the pregnancy, birth and transitions your family will face with the addition of this new little miracle.

  18. Congratulations! Another miracle of life and how blessed he/she is to already have a special little angel watching over them. I pray you have a healthy, uneventful pregnancy and feel God’s presence blessing you with peace, comfort, strength, and continued healing. God Bless.

    Janet

    COLE’S Prayer Team

  19. Congratulations!!!! What a gift. Another beautiful child to love. Phoebe has a litlle brother or sister she can adore from above.
    I wanted that possibility myself after my son passed. I was 43 then. My age didn’t scare me but not possible because my husband had a vasectomy that we both made a decision to early in our marriage. See at the time I had three beautiful young children and I had gotten pregnant. Didnt feel right from the very start. I ended with a miscarriage that left me very week and sick. I had lost so much blood I feared I could have lost my life. So we made a quick decision that I and my husband regret to this day. A year later I longed for another chil. I was 32. Now my home feels empty and my youngest son I feel is lonely. I’m so blessed to have him I thank God every day for him. But there is an emptiness……thank you for sharing Amy. You are amazing!!

  20. Ahhhh congratulations Fair family!!! The is wonderful news. So excited for you and happy to anticipate and welcome your newest into the world. Praying and rejoicing with you! Yippee!!!

  21. What wonderful news! Sending smiles, hugs, and love from Breckenridge, Colorado. God is SO good and His mercy is so evident in this amazing gift of new life. I am happy beyond words for all of you. Thank you Father!!

  22. CONGRATULATIONS. I AM SO SO SO HAPPY FOR YOU AND NATHAN AND YOUR FAMILY. WHAT A BLESSING!!! PRAYING FOR YOU AND YOUR FAMILY AND YOUR LITTLE ONE. THANK YOU FATHER.

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