Nov12

Drum Roll…

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Phoebe had her MRI today. We left the house at 6am and finally made it home around 5pm. The scan was clean and showed no new evidence of disease!

We are so excited and Phoebe did great, as a matter of fact, she recovered from the sedation better than ever before. Although this is great news, Phoebe has a long way to go and we continue to trust the Lord and lean on all of you.

-Nathan

Phoebe walks out of the hospital under her own power for the first time ever!

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

24 responses »

  8. Great news and a great picture. Lord we thank you for your continued goodness. We look to for Phoebe’s complete restoration

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  9. Praise The Lord! Praise The Lord! Let the people rejoice – and keep on praying as God continues to hold this precios little girl and her family in His hands!! Wonderful to see her walking out of the hospital by herself! Extra prayers of thanksgiving tonight!! We love you guys! Carol and Tom

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  13. Oh sweet Phoebe that just made me cry!!! I am so happy and seeing this picture brings so much jOy:) praying for a great night and a nice week home. Yay for clean MRIS!! Fighting and praying Phoebe- we love you!!!

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  14. We cont to pray here in Ga. We also Rejoice that God continues to move. Praise God for another good report. Whose report do we believe. We believe the Report of the Lord. Glory to God.

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  17. WONDERFUL WONDERFUL news! Praise God! We will continue praying for you guys and are especially thankful today for such an amazing report.

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  18. Waited to hear the great news! Praise God!! Your subject line was a joyful indicator !! Continued prayers for blessings strength and health!

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  20. What a journey…unimaginable to most of us. May God continue to bless you and your family as you glorify Him thru’ the miracle of Phoebe. What joy to a mother’s heart to see her child walk out of the hospital. Wow!

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  21. Thinking of you tonight, Phoebe Girl, and your oh-so-wonderful brothers and your dear Mom and Dad. Your friends in Mexico love you all very much! We’re planning Thanksgiving dinner in the parsonage. The older boys may remember being here for Thanksgiving one year. Full, full house. Deacon just made the rounds entertaining everyone with his sweet face. We miss you guys around here.

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