Phoebe gets all dolled up to go get labs drawn. She looked so cute, i thought you would all want to see.

Phoebe has o get labs drawn 2-3 times a week as a part of managing her sodium.

-nathan

Here’s my beauty….sorry it’s a little late :/ She’s doing great!

She looks so pretty with eyelashes. I am a little shocked every time I look at her because it’s been so long since I’ve seen her with eyelashes and eyebrows, it almost looks as if she’s wearing make-up! And this is where you want to see a picture, but I don’t have one at hand. I promise I will get some pics up by tomorrow. Life has been blissfully busy lately. We are so thrilled to have a life away from the hospital and ER runs and Phoebe feeling poorly, we have been making up for lost time. Each day after we finish school, we are working on setting up the farm. We have had a great turn-out of people showing up to volunteer their time and energy to help us get started. The end goal is to have a training center for third world agriculture along with homesteading skills workshops and family camp weekends.

We are blessed to have a great church body and wonderful friends to come alongside of us during this new season. Some of the sweetest fellowship happens while preparing garden beds or pulling weeds. The boys have enjoyed the influx of families and kids coming to play and we are slowly but surely beginning to see the vision become a reality.

Phoebe has been feeling great and often comes to sit in her lawn chair and watch me in the garden. Her stamina still isn’t 100%, but she is making progress. Her feet often hurt because of the way she walks these days. She lost quite a bit of muscle in her legs during her sepsis episode and it has caused her to have knock-knees and over pronate. In other words, she puts her weight on the inside (arch) of her foot and it causes a lot of discomfort. We are looking into getting her another pair of orthotics that fit lower on the ankle but address her over-pronating.  

Her kidneys are still dumping potassium and her liver still sustains some damage, so please pray for those two things. Life is sweet these days, busy and full of activity and all of the things we usually take for granted. Joy is in the small things that make up a life and we are soaking it all in.

Thank you all for praying for Phoebe and continuing to ask after her,

~Amey

Phoebe had a 15 minute seizure this morning and temporarily lost movement on her left side. She had a hard time coming out of it. At the ER now.

MRI results from yesterday came back clean! What a bittersweet morning! Rejoicing together in the ER… It’s been that kind of day…

-nathan

We just returned home from a long day at the hospital. Phoebe did well in her MRI and came out of the anesthesia pretty well. Unfortunately, by the time the MRI was complete it was 7pm, which means we won’t have the results until tomorrow. Her headaches are becoming more infrequent since we started treating her with antibiotics for the double ear infection and that brings a lot of encouragement. We expect great results tomorrow and will keep you posted as soon as we know.

Thank you all for thinking of us and praying for Phoebe, she had a great day.

~Amey

Phoebe has an MRI in Dallas tomorrow afternoon. It was originally scheduled for May 14th but she has been experiencing some headaches so they moved it up. We spent Saturday morning in the ER with her with a fever that ended up revealing a double ear infection. I am praying that the headaches are just part of the infection. This will be her first post-treatment MRI, please pray for clear scans.

Caught Phoebe looking out the window this morning…I wonder what she dreams about…

-nathan