Photographers For Phoebe

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Our beautiful family photos that serve as the headers for our facebook pages were taken by my dear friend at Brandi Burkett Photography. She has organized a wonderful event in Phoebe’s honor to raise money for pediatric cancer research. If you are near to us here in East Texas and are wanting some incredible, professional, beautiful family photos, and want your donation to fund research to cure Phoebe’s type of cancer, ATRT, this is your chance! Hope to see you there.

https://www.facebook.com/TheFairFight

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

3 responses »

  1. What a neat event! I will pray that the families who participate are blessed, as well as the generous photographers! Continued prayers for y’all. Love and peace.

  2. Hello my name is Michael Land and I wanted to use some of Phoebes videos off of youtube with a song that God gave me to encourage those who have terminal cancer. I will let you hear the song first before you say yes. I am praying that with Phoebes help we can encourage those with Cancer and their family that there is hope in Jesus. my email is mland0831@gmail.com. Email me and I will send you the song. Thank you.

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