Phoebe had a good day today. Nathan posted quite a few pictures of her on face book and he tried to post them to Caring Bridge, but the files were too large. She is still trying to adjust to the feeding tube formula feedings. She must be able to tolerate 30 cc’s every hour without vomiting before she can be released to come home. She is still able to eat regular food and drink fluids by mouth with the feeding tube in, but she is only taking a few bites at a time and not wanting to drink anything.
She had her “outpatient” chemo today even though she is still in-patient. She got a dose of Vincristine through her port this evening. This is the drug that is responsible for hair-loss in chemo patients. I have noticed that her hair is thinning in some areas, but haven’t experienced any big tufts coming out yet. She looks great, and she asked to go on a walk twice today which brings me so much joy. She is getting some of her energy back and that is supposed to improve even more once she really starts responding to her nutritional needs being met.
Tonight I’m asking for prayer for Averic, our 7 year old son. He tends to be our child most effected by change or loss and I just think he is struggling. Averic is the only one who cried last year when we told our boys we had lost the baby we were expecting. I miscarried at 12 weeks and then at 9 weeks just 4 months later. He is also our boy who asks the most questions about Phoebe’s health and when she’ll come home and how come God just doesn’t heal her right now? I know all of the boys are really missing Phoebe, they say so, but tonight, would you pray for Averic? He has a storm inside right now that needs quieting and I am finding I have to remind myself that his behavior is reflecting something deeper going on.
Today Nathan and I got to spend some time together with the boys and that was nice. We are looking forward to more time together tomorrow before we head back to the hospital and I am on Phoebe duty. Phoebe is with her Mammaw tonight and I am praying they both get some good sleep.