9:45 am: This morning Nathan and I are going to a “coffee time” here at the hospital to meet other parents with children fighting cancer. It is supposed to be an informational time as well as a social opportunity to connect with others who are on this same journey. I look forward to hearing from the other parents and making new friendships.
Phoebe was not much in a sleeping mood last night. Apparently she got all rested up yesterday after her surgery, so we did a lot of snacking throughout the night and some visiting and talking in between my failed attempts to get some shut eye. It’s a good thing she’s so sweet, it makes it hard to be grouchy even when she’s making me feed her applesauce at 3 am.
This morning Phoebe is taking a bath in a bathtub for the first time in 21 days! Now that she is not hooked up to a thousand wires and tubes, she has more freedom. She is not enjoying her bath as much as usual since her tummy is still so bloated. She has had some tummy relief in the past days, but it seems to be back again today. Please continue to pray that her body would release all of that air. Poor baby is so distended and uncomfortable.
Not much on the agenda for today, Physical and Occupational therapy and taking a ride around in the wagon. Enjoying these days before chemo starts and hoping that we see some tummy relief soon. Thank you all for checking in. I will update again this evening.