5:51 pm:

It’s been an up and down kind of day. Phoebe’s sores are having a hard time healing and they look deeper today than they have in recent days. Her sodium is still wonky and needs to come down and her tummy is still bloated. The boys are still sick. Those are the “downs”.

The “ups” are: Phoebe got her port “de-accessed” today and had a REAL bath in the bathtub! She was afraid at first, but quickly remembered how to play with her bath toys and enjoyed making me “soup” with her cup and bowl. She didn’t want to get out when it was time. We tried to take a walk around the unit but she was too tired so I carried her and walked around. It was SO nice to have my baby girl in my arms walking without tagging a pole alongside of us.

She will get her new port needle in a few minutes and be hooked up again, but it has been a nice couple of hours of freedom. Over all, Phoebe has had a fun day. She slept for a couple of hours on her Grandad’s chest and then played with her toys for a while. My Grandparents came by today and they were thrilled to see Phoebe so up and alert. I’m afraid my posts have made it seem that she is in constant pain, which she is not. In spite of her sores and tummy pain she has a good morphine drip that keeps her pain under control for the most part. She does get restless and frustrated at times, and that can be a side effect of the steroids she is on.

She had an episode today where she “zoned” for half a minute and was not responsive. This is common when her sodium levels get high and can be very scary. Keep praying for that sodium..

I will leave the hospital tonight and have dinner with Nathan before heading home to my boys. I am praying for total IMMUNITY to whatever they have.

My Mom and Nathan’s Mom will take the Phoebe shift tonight and she will be in good hands with her Mammaw and her Grammy. Thank you all for your continued prayers.