ICU: MIR Today! (Feb. 27th, 2012)


8:46 am:

Clinging to the hem of His garment….about to go downstairs for MRI. Thank you all for praying!

1:11 pm:

Phoebe is back from her MRI. Now we just wait for the radiologist and Oncologist to read and assess the results and give us a report. We were told this could take a while, so I’m expecting a long afternoon of waiting. I will post the MRI results here as soon as we have them. Thank you all for praying!

6:01 pm-MRI Results:

Rejoicing! Praising God! The weight of the world is lifted!!
Thank you all for standing with us!!!
Celebration goI should claring on in the Fair Family! xoxoxo

8:42 pm:

Nathan thought I should clarify that although Phoebe’s MRI came back CLEAN today, with NO signs of metastasis or tumor growth, we ARE still fighting this cancer through chemotherapy. We are on week 5 of a 52 week chemo protocol. We were very concerned about today’s MRI because her sepsis has many of the same symptoms as cancer metastasis. Cancer or metastasis after this hard-hitting chemo will mean the end of chemotherapy for Phoebe, so this has been  HUGE day for us.
MRI days are the most nerve-wracking days for cancer families because you wait to discover if all your fighting has paid off.

With other types of cancer you sometimes have the option to switch protocols and see if the cancer can be killed with a different type of chemo. With AT/RT, there is only one protocol with a 50% success rate, and we are on it. It is called the Dana Farber protocol and was developed in Boston. The other protocols available for AT/RT have about a %10 success rate. So, we are fighting with the big guns, this is nasty chemo, there is nothing stronger for it at this time.

Today we are thankful for the opportunity to keep on fighting! Please pray for healing from the fungal sepsis over the next several days!

Thank you all for praying!! AMazing day!

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

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