There’s No Place Like Home!

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Phoebe was beyond excited at the prospect of going home as she waited to be discharged.

Phoebe sees her bedroom and bedset for the first time.

 

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

36 responses »

  1. Amey and Nathan,

    We are so excited for this moment. We remember the first time Amey showed us Phoebe’s room. We were so touched. The room had every detail for our girl. This has been months ago. As I looked through these pictures tonight they have filled our hearts with happiness. On a night where someone in Maryland wins the mega million, our mega million is to see our Phoebe at home and you all united and a family once again. Praise the Lord for this moment. Amen.

  2. Again you get my crying!!! Sweet Phoebe enjoy your time with your amazing brothers and parents and your dog!
    Get strong and happy and get every laughter and butterflie you can get! Bless you all!
    We’re all very happy with you!

  3. May the Lord bless you and keep you; the Lord make his face to shine on you and be gracious to you; the Lord turn his face toward you and give you peace. Numbers 6:24-26

    I pray this weekend at home with the entire family will fill you all so full of love and hope and encouragement that it will overflow and be there to wash back over you again and again when you need it most. God is good!

  4. I love it! all of you gathered around her, coloring with her dog standing guard, and not the least her beautiful bed. i have bed jealousy! very, very sweet!

  5. Absolutely fantastic ….. Happy Days Are Here Again …. So happy for all of you …. I hope this trip home is perfect in every way!

  6. Tears overflowed with happiness for all of you as I looked at the pictures! What a celebration that our God is so good to bring you all through to this point. Praying for a peaceful weekend of extraordinary memories for you this weekend. That you are able to enjoy this time without anxiety from being away from the hospital. Praying for Phoebe’s continued strength and healing especially as you prepare for the next round of chemotherapy.

  7. Wow! God is Awesome! Praying for the weekend to go great and be a restful encouraging time for everyone. I have tears of joy streaming down my face as I look at the pictures. Praying for the next round of Chemo. I once again thank God for giving the gifts of knowledge and the ability to work in the medical field by seeing how He has brought all of you along on this journey so far. Thank you for sharing!

  8. Soooooooooooooo excited to know she is home with you guys!!! Continuing to pray for her healing and for peace and strength for you all!
    Beth from PA(Debra Mavis’ sister)

  9. Praise God! I am so happy for all of you. To seeing that smiling face and all of your smiling faces brings tears to my eyes and happiness to my heart. Enjoy your wonderful weekend.

  10. AMEN!! What a great weekend for you all to be a family without the attachment of the hospital! God is so good and I pray that you all have a fun and awesome weekend. Love the photos and her big smile for going home to be with you all, makes me tear up and brings a joy to me to see your family united under one roof even if for a short visit!! Thank you for sharing it with us!

  11. Amazing, I am so happy for all of you! I pray that you will have a worry free weekend without beeps. God is so good and I will continue to pray for all of your family. ENJOY

  12. Hallelujah!! It is soo good to see Phoebe at home with you all!! God bless and keep as you nurse this sweet atypical miracle back to health and live Joyfully. May the hospital stays be short and sweet from now through her treatment!

  13. This is so wonderful and such an answer to prayer! We are so happy that your family can all share the same roof. We are praying for a great weekend and for 100% healing for Phoebe!

  14. Just wonderful, praise God from whom all blessings flow! The pictures are great, Phoebe looks wonderful, and happy to be home. I hope and pray you all have a great weekend at home together. My prayers will continue for your sweet girl. God Bless,

    C.O.L.E. Prayer Team – http://www.colesfoundation.org

  15. Love all the photos!! Phoebe Fair you are adorable and such a tough cookie. She looks so happy, I hope it was an amazing evening for you all, and you can look forward to so many more:)!!! This is awesome, just made my day! Hope it’s a fantasic weekend for you Fair family!!!

  16. So beautiful! She is a miracle and I believe God has wonderful plans for her precious life! I am praying daily! Thank you for sharing your journey and letting so many partner with your family in seeing Phoebe get well and become the revivalist and nation changer God has created her to be.

  17. These pictures are priceless! We are praying for Phoebe’s time at home and that her fever subsides. She is a Miracle and seeing her in her home with you all is testimony to all that the Lord has done and answer to the prayers of thousands! Praising God with you!!! 🙂

  18. My heart is full of joy looking at those photos– I can’t imagine what it’s like for you all. Enjoy it! Prayers for some rest and peace while you are all together as a family!

  19. These pictures are amazing, so nice to see Phoebe home and in her room….love the pic of all of you in the car going home too….she’s in the back seat with a precious smile on her face! I’m so glad she got to come home if even for the weekend. I bet that did a lot of good for all of you.
    Hugs to you all 🙂

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