Phoebe was receiving platelets to get her count up when she had the reaction and turned white. She was taken for an emergency CT scan to check for tumor regrowth and they reported that they “did not find anything scary” on the scan. While she was being taken up to ICU her eyelids and lips started swelling up demonstrating that she was having a reaction, most likely to the platelets. They discussed intubating her, since her airway was also swelling but Nathan asked them to hold off and they put her on the bi-pap machine instead. She was given Benadryl and a stress dose of her steroids and the swelling started to come down immediately. She sat up and talked and smiled for a bit then went to sleep and is napping now.
They are giving her broad spectrum antibiotics and watching her closely for signs of infection. Everyone is most concerned about the weakness in her diaphragm because it is so ATYPICAL of what they usually see with kids in Phoebe’s situation. But then, Phoebe tends to be atypical. So, for now we are watching and waiting to see if she continues to improve. Her blood pressure is a little higher, and her other numbers look good. We are praying that this is just a reaction to the platelets and that this is just a little blip.
Thank you all for continuing to pray!