Phoebe was receiving platelets to get her count up when she had the reaction and turned white. She was taken for an emergency CT scan to check for tumor regrowth and they reported that they “did not find anything scary” on the scan. While she was being taken up to ICU her eyelids and lips started swelling up demonstrating that she was having a reaction, most likely to the platelets. They discussed intubating her, since her airway was also swelling but Nathan asked them to hold off and they put her on the bi-pap machine instead. She was given Benadryl and a stress dose of her steroids and the swelling started to come down immediately. She sat up and talked and smiled for a bit then went to sleep and is napping now.
They are giving her broad spectrum antibiotics and watching her closely for signs of infection. Everyone is most concerned about the weakness in her diaphragm because it is so ATYPICAL of what they usually see with kids in Phoebe’s situation. But then, Phoebe tends to be atypical. So, for now we are watching and waiting to see if she continues to improve. Her blood pressure is a little higher, and her other numbers look good. We are praying that this is just a reaction to the platelets and that this is just a little blip.
Thank you all for continuing to pray!
~Amey
An Atypical Miracle 
Have been praying non-stop, while watching and waiting to hear the news! Will continue to pray and pray and pray . . . thank you for the update!
Praise God! LOTS of prayers keep coming from us and we anxiously await each update. We will continue to pray that Phoebe deals with each step of this fight and has the best possible outcome along the way.
The Anderson Family
Praise the Lord! Praying that this is just a little “blip” in the road!
Thanks for keeping us updated, Amey!
Blessings,
Peggy
Like others, I’m also glued to my computer waiting for updates . . . this one is encouraging . . . I will continue to pray hard for her to have the strength to come out of this phase quickly, for her medical staff to stay on top of the situation and for Phoebe to get the rest she needs to keep on fighting.
I am praying like crazy for this precious little girl. She has become Pheobelicious to me as well. Kiss her on the head for me and tell her that Arkansas is praying for her to feel lots better!
God Bless You!!!!!
Renee
Please Lord, let this be a blip for little Phoebe. Millions of prayers constantly going up for this precious baby girl.
Scarlett got hives every time she had blood or platelets. It is listed as her only allergy. They can pre-medicate before giving blood products with Benadryl (and Tylenol when she is neutropenic to prevent any transfusion-related fevers).
How scary! I’m hoping its just an allergic reaction and nothing more…..my prayers are with you all. Thanks for the updates.
Thank you for the update!
Continuing to pray!!
We’ve been there…not exactly where you are, but our 17 month old has/had malignant neuroblastoma and did 4 rounds of chemo after surgery to remove a tennis ball sized tumor from his 26 pound little body. We were in ICU for 12 days and in the hospital lots more days than that over and over again. Hang in there, we are praying for you and your precious baby girl. Our little guy turned 2 in February and is tumor free. We monitor him very closely and we aren’t totally in the clear, but we are so thankful for every day.
Beautiful baby girl, you amaze me constantly with your strength!!! I pray that your counts continue to rise and that your blood pressure continues to improve. You are such a gift from above and I pray for your complete healing here on Earth daily!!! I will also pray for your dear, sweet mommy ~ that she can get some good rest without the invasion of cancer thoughts. She loves you and your brothers so very much and deserves some good sleep! God be with you sweet love!!!
Sending love and prayers from PA!
Kendra
C.O.L.E.’s Prayer Team
http://www.colesfoundation.org
Good call, Dad! Praying this is just a little bump in the road and you’ll be out of ICU in no time. Love you, Lu
Praying..
Praying for a great day! We love you Phoebe!!