What we’ve been up to….

Standard

Phoebe went to the Dallas Aquarium! This is her first time to go somewhere other than the hospital or home since January 1, 2012.

SMILE Fair Family!!

Proud brothers!

SO GOOD to be OUT and ABOUT with our girl!!

Time for some backyard Play-Doh fun!

A Nuzzle in his natural habitat…

Phoebe watches her brothers swim in Daddy’s backyard aquaponics system. This is the sustainable food system that Nathan was working on while we did our agricultutral training at the farm.

 I cooked my first meal in four months and we all sat down together to eat dinner. It is so wonderful to be together. Also, our dear friend Jocelyn who has nannied for us for several years on our outreach trips and summers in Mexico is here to help out for a couple of weeks. Phoebe’s middle name “Lucille” was chosen in honor of our Jocelyn “Lucille” because she has been such a blessing to our family. She loves our boys and serves our family and we are thrilled to have her here.

Phoebe has an apointment tomorrow to check her labs and make sure she’s doing okay (or that we’re doing okay administering her meds!) lol. I am glad we’ll get to “check in” and see how she’s doing because although she seems fine, there is a certain security in having those electrolyte numbers. Thank you all for praying for us, we are soaking it all in while we have her home!

~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

25 responses »

  1. I am beyond estatic for you guys! Praying multitudes of blessings over all of you this week so that you can enjoy every second of your time home with your baby girl!

  2. Wonderful day, I’m so happy for your family outing and dinner at home. Things that we take for granted now seem more special:) have a great week Fair family.

  3. Awesome photos of all of you together, outside the hospital. Feeling so much joy for your family right now and praying it continues.

  4. Enjoying seeing your entire family together and having fun! May God continue to heal Phoebe and let you enjoy your entirr familt together!

  5. Awesome pictures. So glad y’all are getting to have some good ole family time together. Our God is an Awesome God….Prayers

  6. Wonderful pictures Fair family. Good to see you all. and to see a smile on Phoebe’s face. Continue to enjoy. Thanking God for HIS awesomeness 🙂

  7. Cant stop smiling …..Awesome info & photos …. So happy for all of you! I continue my prayers for the entire Fair family …. praying for strength, healing and a future of happiness.

  8. I am filled with joy today over these pictures! Your family has really touched my heart! Keep up the fight sweet Phoebe – you have people all over the world pulling for you and praying for you!

  9. It is so good to see all of you having time together outside of the hospital. We continue our prayers for all of you and that Phoebe’s blood tests will come back within what is good for her. God bless you all!!

  10. Wonderful pictures and wonderful news about Phoebe doing well! I will be you all feel so “normal” now. Praise God for all He hass done!

  11. Thanking God that you are enjoying the moments spent together where ever it may be!! You can tell that each one of you are loving every moment with Phoebe, God is good!! Praying the doctor’s appt. goes well and she is able to continue to stay at home where she belongs!! God bless!!

  12. Great photos and what an adorable family you all are! Hope things went well at Phoebes check up today. Looks like she’s really enjoying her family time and just being outside in the fresh air 🙂
    Hugs to you all!

  13. Oh sweet family… I have recently found your blog and as I scroll back through your past posts, I find myself in tears. I am committing to praying for your family and dear Phoebe. Could I ask a small favor? Could I get the boys names from oldest to youngest so I can pray for each by name? Many hugs and prayers from Washington state.

  14. This is so beautiful! Love some play dough time and fresh air. Meals together with your precious crew! Praying for Phoebe!! Got your postcard today and my kids loved it and LOVE Phoebe! We are all praying! God is big and mighter than our weakness! My husband has a big lung scan on Monday so praying for peace and clear scans! It call all be so scary but those play dough moments give us hope!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s