May4

Back Again So Soon?

Posted on by
Standard

Look who got to come home again today!  Here she is watching her brothers jump on the trampoline….

Her fever abated again and she got another good dose of IV antibiotics so she was released from the hospital today and is doing great. We will go back on Tuesday for labs and be admitted for the night to prep for her scheduled MRI on Wednesday. Yep, it’s MRI time to check for tumor re-growth. She will be intubated and sedated for 3 hours while they scan her brain and spine. It’s always nerve-wracking waiting on those results, they even have a name for it in cancer circles; “scanxiety”. Please pray for a clean MRI and also that Phoebe will do well under anesthesia. Hoping our weekend is uneventful and grateful to have our girl home!

Filed under Uncategorized | 15 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

15 responses »

  3. Praise the Lord! This is good news. We keep on holding you up for the MRI in prayer. Pray for peace and confidence.
    Chris

    Reply ↓

  5. Thank You Jesus for allowing Phoebe to come back home. May they had a wonderful weekend, and be with Phoebe as she goes under for her MRI. Lord, we pray for a clear scan and peace for her family as they wait the results.

    Reply ↓

  9. I dont kmow ur family personally but I am friends with denise but I think and pray for ur family everyday. I just kmow what a amazimgfamily u have and a special lil angel u all have . I have 3grandbabies myself and I just cant imagne I am dealimg with alot in my life rite now mothing like you all but I just want u to know I look up to u all and kmow with ur faith Nd strenghth in god if,u can do I can do it to .,give that precious angel a hug for me !!!! God bless u all!!

    Reply ↓

  10. So glad to see her home and watching her siblings! We will be praying for her and your family too for the next week. Praying no tumor and she is able to come home again right after it!! God bless!!

    Reply ↓

  14. Amey, I have just spent a good thirty minutes educating myself through this blog on all things Phoebe. My heart goes out to you, this adorable child, and your entire family! I don’t know your precious Phoebeilcious but I will be coming alongside y’all from this point on. (I “met” your mom last night when I interviewed her on my radio show and she pointed me this way.) In prayer for y’all and with y’all. To God be the glory. ~Blessings

    Reply ↓

  15. Happy Mother’s Day to you Amey,
    Prayers now that you will all enjoy a nice meal somewhere, and be at rest.

    Reply ↓

Leave a Reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s