Phoebe had a great time at home this week…she got to be here to celebrate Averic’s 8th birthday, visited with old friends who are moving to Maine, made her first visit to a roller skating rink and even took a trip to Barnes N Noble!
When she wasn’t busy being busy, she took advantage of some snuggle time with her brother and turned it into a nap…..
Averic looks like he’s ready to get up, Lol!
Today we took her back to the hospital and she started her next round of chemo. When we arrive at her room on the oncology floor each time we go in-patient, she says “No Mommy, I don’t want to…” and it breaks my heart. She knows that she will be staying and not coming back home for a few days. She actually refused to sit on the hospital bed today and instead spent the entire afternoon and early evening on the couch. I think she was in denial…poor little bugger bean..
All in all, it was a great visit home. I would like to see her sleep better at night, level out a bit more emotionally with the steroids, and drink more fluids by mouth. Her home health Physical therapy consult is on Thursday and I am glad that we will have that in place for her now when she is at home.
And the week was touched with sadness too as we learned that Maddy, one of Phoebe’s AT/RT friends in Florida, received devastating MRI results after her chemo treatment was completed. There is no recourse for her, only to keep her comfortable. Please pray for Maddy’s family tonight…these families are so dear to our hearts.
~Amey
An Atypical Miracle 
Love snuggle times 🙂 so precious. Will pray for Maddy and her family tonight. Love to the Fair family from the Mayer family 🙂
I’m so glad it was a great visit home! And I can’t believe Averic is 8! Time really does fly. I love the picture of Phoebe napping on her big bubby. So precious. I’m so sorry to hear about Maddy. My thoughts and prayers are with her and her family. Love you bunches and will see you soon!
I hope this round of chemo goes as smoothly as possible. Prayers to Maddy and her family.
I wait everyday for your posts..it saddens me when i see that you posted late or even in the middle of the night. I worry about your exhaustion! My life of course knows none of the trials of yours but my husband and i have a diabetic son. Last night i was up at 2:30 and again at 3:30 checking blood sugars. Today we press on regardless. Our family is touched by your posts. I check your website several times a day to see if u posted yet. The children automatically pray for the Fairs by name. We send those prayers and are glad the Holy Spirit understands what i am saying when i am speechless.
Aww, poor sweet girl. Praying and praying this week is smooth and Phoebe will have peace during her stay in the hospital.
<
God bless you all, and my prayers for Maddy and her family… May they take comfort in knowing that Maddy will have a wonderful journey to Jesus….and all her pain, sorrow and sadness will go away! Jesus will take very good care of her! Way to go, Phoebe! You keep on keeping on!
dearest~we pray for you all daily. touched by your courage, and our Great Big Wonderful God who holds you all in His Precious Loving Embrace…
So happy she had a good visit at home. Our prayers will include Maddy and her family. Isn’t is wonderful to know we will see her again some day. What a day of rejoicing that will be…
Hugs, Marilyn
We are continuing to uphold little Phoebe and each one of you in our prayers. Love you dearly!
Such a sweet photo of Phoebe and Averic. That is one loved little girl. Continuing to pray and wear my bracelet! Love to all….