Phoebe had a great time at home this week…she got to be here to celebrate Averic’s 8th birthday, visited with old friends who are moving to Maine, made her first visit to a roller skating rink and even took a trip to Barnes N Noble!
When she wasn’t busy being busy, she took advantage of some snuggle time with her brother and turned it into a nap…..
Averic looks like he’s ready to get up, Lol!
Today we took her back to the hospital and she started her next round of chemo. When we arrive at her room on the oncology floor each time we go in-patient, she says “No Mommy, I don’t want to…” and it breaks my heart. She knows that she will be staying and not coming back home for a few days. She actually refused to sit on the hospital bed today and instead spent the entire afternoon and early evening on the couch. I think she was in denial…poor little bugger bean..
All in all, it was a great visit home. I would like to see her sleep better at night, level out a bit more emotionally with the steroids, and drink more fluids by mouth. Her home health Physical therapy consult is on Thursday and I am glad that we will have that in place for her now when she is at home.
And the week was touched with sadness too as we learned that Maddy, one of Phoebe’s AT/RT friends in Florida, received devastating MRI results after her chemo treatment was completed. There is no recourse for her, only to keep her comfortable. Please pray for Maddy’s family tonight…these families are so dear to our hearts.