Jun10

ICU

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She’s being admitted to the ICU…she is acting very much the same as she did when she went septic. She is incredibly groggy and hard to pull back to awareness. I don’t even know what to say..are we really doing this again? Please pray..

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

17 responses »

  1. I’m up right now and praying for Pheobe and for all of you! Strength in the midst! Love you!!! Hugs from Calif!

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  3. I have sent out prayer requests to that are in my prayer partner list. God bless you and your family, and bring Phoebe through this and back on her recovery track.

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  4. PRAYING!!!!!! Jesus we pray this is just a minor reaction and that she will be in and out of ICU. Praying for your comfort to be with Amey, and family. Bless them with your Peace that passes all understanding. We Love you Jesus and know you are with Phoebe right now. Heal her Lord. We pray this in Jesus most precious name. Amen.

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  7. Praying for you Phoebe – praying she will quickly pull through this. Fight through it Phoebe and know how loved you are!!!! Will be thinking of you.
    Were leaving out of the country and will ache for Phoebe updates while were gone. Praying that we will have wireless so I can get online and check on her.
    So many positive thoughts and prayers – keep fighting Phoebe Fair!

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  10. Oh Amey… I am praying without ceasing…I am so sorry you all have to go through this again. Lord, please bring Phoebe back to good health…return her to the bubbly sweet little thing she was just a few days ago…please.

    Holding you close in thoughts and prayers
    Pamela

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  12. Praying!!! I will lift Phoebe up at church this morning!! Stay strong! Keep on fighting little miss Phoebe!!

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  14. Praying for you all. Praying for Gods supernatural peace and wisdom for you and Nathan. Praying the arms of our Father around Ben, Averic, Deacon and Phoebe!

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  16. lORD JESUS, PLEASE WRAP YOUR ARMS AROUND YOUR PRECIOUS CHILD! HOLD CLOSE TO YOU THE ENTIRE FAMILY. MY PRAYERS ARE WITH YOU.

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  17. Here in Chihuahua Mexico we continue praying for all of you. We do not know what to say… but be sure we are praying.

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