~Life~

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These are the days….

Phoebe picking up her veggies at the Farmer’s Market…

A water sprinkler wrestling match between brothers….

Look at those MUSCLES!!

And don’t forget MY muscles!!

Hmmm…what kind of trouble can I get into this week?

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

18 responses »

  1. So grateful to see all four children together in the same yard at the same time playing and having an incredible morning together. What a joy for the family. Praying for sweet Phoebe to have a good recovery this time and enjoy her four weeks being at home. That is the best medicine for the whole family. Try to stay cool! This hot weather is tough. Love to all, Pat Williams, a grandmother in Tuscaloosa

  2. There shall be showers of blessings………………and you have pictures the most precious 4 ones! Uplifting to see them all!!

  3. Loved this post! Phoebe looks fantastic! Bright eyes and just watchin’ her brothers play…..you’ve got such a beautiful family! These pictures really do make me happy. God bless and hugs to you all 🙂

  4. Hey- kasha from Stephenville. So glad that you are enjoying these days. Soak them up! I definentely know it was a God thing that we met. I have been in and out of 3 hospitals since last Friday with my 3 yr old son. We even went to Childrens medical- Dallas. We are currently admitted at cooks- ft worth, been here since Monday. We thought our tummy pain was appendix or virus. Now they are thinking more along the lines of a bacteria or parasite. Tired of the small room and IV and pain. Kaden and I draw our strength from Phoebe. I tell him,” if Phoebe can do it- so can you”. He knows her so well for them to have never met before.

    It seems so weird how our stories are linked. We will continue praying for you and your family and expecting good days for us all!

  5. Thank you for the adorable pictures….I feel closer to you all when I see these! God Bless you all and prayers are definitely still going up! God is so good!!

  6. I like the pictures, too and it is Life as normal as it can be. I bet Phoebe just loves to be out and about just like any other little girl would be. And your boys no doubt enjoy having everyone at home as a family. Running through the sprinklers, horsing around for the camera, being silly!

  7. Absolutely beautiful…Thank you. (Your photos of life completely ministered to my soul with gratitude to our wonderful Creator and Giver of Life!)

  8. That was just wonderful. Love seeing the tangible answers to our prayers. LIFE indeed. They all look so happy, relaxed and loved. Love the photos of “The Phoebster.” She looks so good and content.

  9. Thanks for sharing the precious pictures of your beautiful family!! Isn’t it nice to see them smile and have fun? I am sure you are enjoying every precious second of it!! God bless!!

  10. These are adorable!! Everyone looks like they’re having fun. She’s so happy to be home, you can tell she doesn’t mind a bit sitting here and taking it all in. She is so beautiful! We love you Phoebe and continue praying and fighting with you!!!

  11. Amey, she looks so much brighter and alert – people should send you captions for THAT picture of “The Thinker” – God continues to bless your little family with so much abundance – it shows in all your faces!
    Donna Wilkins, a friend of a friend of your parents!

  12. I always enjoy seeing the pictures of everyone. Phoebe looks so great and I can see some hair growing! She’s beautiful.

  13. love all of the pictures and especially the captions. Your middle son looks like his great grand father John Green, miniature one for now. But minus the hat! So greatful that things are closer to being what we consider “normal”. Enjoy! I continue to pray for each of you.

  14. Hi Amey,
    I had seen your blog a few months ago from a link on a friend’s Facebook page and my heart was instantly touched. I am the mother of twin daughters, turning 5 next week.
    I came back to your blog today and noticed that Julie Ziglar Norman is your mother – I saw her speak at a conference in San Antonio this past April and loved her; I have also had the pleasure of seeing your grandfather speak once.
    But, back to the true meaning of my post. Phoebe moves me each and every time I see her. There is no denying the strength and purpose within her. And your faith…your faith replenishes mine. I will be praying for your sweet girl; thank you for sharing the story of your beautiful family.

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