Jul13

Update on Maddie Star for those who have been following

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For all of you who have been following Maddie and asking me for updates, her Dad posted this this morning…

It is with such deep sadness that I have to post that our little Maddie passed away this morning.  She was with her mommy and daddy at home and it was very peaceful.  She was so brave, she fought so hard and will always be my hero!!!  We love you STAR!!
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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  3. So sorry for Maddie’s family… Maddie watches over them from above now… no pain..no sorrow… God bless, keep and comfort her family and friends…Maddie, if you see my sons, Bo and Chris…give them a hug for me…. They were 30 and 19 when they went to Heaven in separate accidents…but I know the loss your family feels… Prayers for them to heal! Rest in peace, sweet angel!

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  6. Let us not forget this little angel, for she is in heaven watching over us all. Our prayers go out to the family, I can not imagine their loss.

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  7. Very, very sad for their loss, and for the loss of Maddie for you and your family too.
    May the heartfelt prayers and poured-out tears of so many … lighten the grief-load a little for Maddie’s family and for all who have loved precious Maddie.
    In praying for Maddie’s family, we have confidence that the Lord God Almighty attends to their hearts and minds by His abiding presence.

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