Aug16

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Here’s to a great day celebrating our Atypical Miracle!

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

32 responses »

  2. Please let Phoebe know she is loved by so many people and we wish her a very Happy Birthday! Still praising God for the good news with the MRI!

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  3. HAPPY HAPPY BIRTHDAY PHOEBE!!!!! Love Love Love how her brothers love love love her, because it isn’t many brothers who would sit down with her and have a tea party, let alone let you take a picture having a tea party!!!!! Just shows us how much Phoebe means to them! (and all of us too!!!) Thank you so much for sharing!!!!!

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  11. Happy Birthday, sweet Phoebe. You are loved by so many people. I hope your day is full of lots of love and laughter. You are special, and you are created by God. Praying for many, many more birthdays for you. Love to you and your family, Pat Williams, a grandmother in Tuscaloosa

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  12. Happy Birthday Sweet Phoebe! We pray for you and your family constantly, and you are definately a blessing from the Lord! He has big plans for you little one 🙂

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  17. Happy birthday, Phoebe Girl! Two has been a tough year, but you pulled it off like a champ!!! And Brothers, you are heroes who love with selfless hearts!

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  18. Happy 3rd birthday Phoebe!!! Hope you all have a great day and may this 3rd year of life be one of victory, love and joy!

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  19. Happy Birthday Phoebe!

    With every passing hour
    With every passing day
    You’ve become a special part of our lives
    In a very special way!!

    Hope your Birthday is phoebefantabulous!

    Love you little angel! Greg and Kerry McKendall

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  23. Happy Birthday precious Phoebe! I hope you have a day and year filled with the grace of God’s blessings, good health and the love and support of those around you. And tell your brothers that they are wonderful young men for sharing your tea party on your special day. Have a wonderful day!

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  30. Happy happy happy Birthday beautiful Phoebe! We hope you are having an absolute ball & enjoying your time with your brothers, friends and family. Lots of love from Australia, xoxo the Petzke family

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  31. Happy Birthday, Phoebe. When my granddaughter Megan was two she had a little tea set and she would make me “choklit, moklit, blubeddy tea” to cheer me up or just for fun. She is nineteen now and starting her junior year at JMU in a week or so. We loved our tea parties and pray that you will remember yours when you are nineteen (or 76) with the same kind of fond memories. I pray for you often sweet baby girl!

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