Next Round Of Chemo In-Patient

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Phoebe continues to make strides (no pun intended) with her physical therapy. She is able to take steps now with less and less help. She also received orthotics that should help the process along. Every time I see her try to walk, I just imagine the day when she will be running around the house and playing outside with her brothers.

 

We started the day out today in cardiology where Phoebe received an echocardiogram to make sure her heart is standing up well to the chemo and strong enough to start again tonight. The test was administered by a sweet family friend, Phoebe has connections everywhere! We will let you know the results of the test when we get them.

As I write this, Phoebe and I are sitting at the hospital clinic waiting to be admitted to the oncology floor where she will undergo the next round of chemo treatment. This one is a little sad because she will lose the hair she has re-grown over the past two months of a more relaxed chemo regiment. Last week she received spinal tap chemo and today she will start on some of the more nasty drugs, which can make her sick and cause her hair to fall out.

Phoebe napping before chemo treatments

Please pray for Phoebe as she spends the week in the hospital undergoing treatment. I have been really praying a lot lately for protection for all of Phoebe’s parts that could be damaged by the chemo. So please pray for her heart, brain, liver, eyes, hearing and kidneys specifically as the chemo attacks the cancer. The list of side effects from her treatment can be terrifying, but we draw comfort from God’s word to His people in Isaiah:

 ‘Do not fear, for I am with you; Do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, surely I will uphold you with My righteous right hand.’  “Behold, all those who are angered at you will be shamed and dishonored; Those who contend with you will be as nothing and will perish. “ You will seek those who quarrel with you, but will not find them, those who war with you will be as nothing and non-existent. “For I am the Lord your God, who upholds your right hand, Who says to you, ‘ Do not fear, I will help you.’

-Isaiah 41:10-13

Thank You All!

Nathan (Phoebe’s Dad)

Phoebe's Stuff

Phoebe’s Stuff

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

11 responses »

  1. Our prayers are with Phoebe for a peaceful round of chemo…that none of her other organs will be damaged.

    Blessings,
    Peggy & Mike

  2. Every single day thoughts of Phoebe cross my mind, enter my heart … Every prayer that I give to God has Phoebe in it …. I am inspired every day by your familys’ journey … Much much love to you all. He holds you in his hands!

    K

  3. Praying hard and daily for this sweet angel and all of the Fairs. I hope that Phoebe sails through this chemo treatment.

  4. Ever see “It’s A Wonderful Life,” the scene where everyone in town is praying for George and Heaven just keeps hearing, “George…help George…George….take care of George…” I think it must be like that every day at the Throne of grace, where innumerable prayers go up every day, and God hears “Phoebe…Lord, help Phoebe…Lord, look after Phoebe….Phoebe…”

  5. So exciting seeing her taking steps! I’m praying this next round of chemo won’t damage any other organs in her body. I pray that she goes through it like a champ. She doesn’t have too many more treatments to go through does she? Bless all of you and know that you are all in my prayers daily.

  6. I am echoing your specific prayer requests to our Lord and Savior, who is protecting every beautifully made part of your sweet Phoebe. Praying for peace of mind and continued strength of spirit for your family too.

  7. We pay for protection of phoebe’s body as the chemo attacks the cancer!!! What a wonderful video of phoebe working hard at walking! We continue to pray for you all!

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