10 Days and Counting

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Ben has cracked one of his teeth in half, but is too sick to get it fixed right now. He doesn’t have much pain and actually thinks it’s pretty cool!

Ben lost half his tooth in a nurf gun battle

Ben lost half his tooth in a nurf gun battle

Phoebe was discharged from the hospital Saturday night. She has been doing well and will be admitted next week for her next round of chemo. Amey and the boys are still sick and staying at my parents’ house in East Texas, while Phoebe and I have split time between the hospital and our house in Dallas. Wednesday marks 10 days that we have been apart and we really don’t know when Amey and the boys will be able to come home.

Deacon and Averic are feeling better but Amey and Ben are still in the throes of a nasty upper respiratory infection. This is by far the longest I have been away from the boys or Amey since we were married 12 years ago. It is sad, Amey is really missing Phoebe and the boys really miss their little sister. Please pray that the sick ones will heal so we can have our great reunion.

-Nathan

Phoebe plays with her orthotics on.

Phoebe plays with her orthotics on.

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  1. Oh boy, just look at that tooth! My son cracked his front tooth when he was 17 mths old. He was toothless until he turned 13!! The adult tooth took forever to grow in. Praying you are feeling better soon Ben!

    Lifting up your family for health and a soon reunion.

    Blessings,

  2. When it rains it pours and hopefully, this is the down pour. Praying for healthy bodies all the way around and that Phoebe is ok thru this next round of chemo. Stay strong. Fighting and praying for you all!!!!!

  3. Hang in there Nathan. It’s hard now but the reunion will be great 🙂 love ya and good to see Phoebe playing and handling this round fairly well.

  4. Prayers for the Spirit to bring healing quickly, so you can be home together! Also prayers for Phoebe to continue her great progress while she prepares for her next round.

  5. Praying for your family!!! We were just inIn a similar situation.Praying that Amey and the boys get better and you can reunite your family!!!

  6. So sorry the boys are sick. My entire family is from East Texas around Nacadoches. My Dad grew up in Garrison and my Mom in Tenaha. Small world, isn’t it?

    Praying for Phoebe as she starts this round of Chemo and praying you as a family will all be back together soon.

    Sunny

  7. I love that pic of Ben and his half-tooth. I have a Ben (grown with two kids of his own now) who did that same thing to the SAME tooth probably around the same age, only he did it falling off his bed 🙂 It got fixed and you can’t even tell it was ever broken. 🙂 God bless you guys abundantly. I love your family and pray for all you guys.

    Becky from Tyler

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