Next Round

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We are sitting in the hospital waiting to be admitted. In about one hour Phoebe will receive chemo through a spinal tap. Unfortunately, that requires her to be sedated. The rest of the week she will be in-patient receiving IV chemo.

It’s hard to explain how difficult it is to take her in for these kinds of treatments. I would expound upon that a little more, but I’m not as in touch with my “feelings” as Amey is. : )

Tomorrow afternoon we close on our first home and we will spend the next three days repairing, painting and getting it “Phoebe ready.” Our YWAM family and First Baptist Church family are really coming along side us. It both humbles us and blesses us to be apart of these amazing communities of believers. What would we do without the body of Christ!?

-Nathan

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. Dear Amey, I am already asking Father for absolute precision in the placement/procedure, the application of the meds, no mistakes in monitoring, and angels present in larger numbers. And for you, alertness and clarity. Love to you all.

    Ian A. Rogers
    TCIC AUDITOR
    OFFICE: 512.424.2809
    CELL: 512.574.9307
    FAX: 512.424.7164
    “This message contains information which may be confidential and privileged. Unless you are the addressee (or authorized to receive for the addressee), you may not use, copy or disclose to anyone the message or any information contained in the message. If you have received the message in error, please advise the sender by reply e-mail and delete the message.”

  2. Nathan,
    Extra Prayers of comfort and peace for you and Amey during this round as well as Phoebe and her care team, today!
    Congrats on your closing 🙂
    Blessings,
    Peggy & Mike

  3. I just can’t imagine how difficult it is to have to subject your child to chemo. I just ache for you. Praying and praying for you Phoebe!!

    Blessings on your move and praising God for brothers and sisters.

  4. I am still praying for sweet Phoebe every day. I know this is a big spinal infusion. Praying for her to be completely healed. Our God has the power to do this, and I know he will. Love to all, Pat Williams, a grandmother in Tuscaloosa

  5. Precious, Phoebe!!!! May the angles take charge over you least you dash your foot against a stone!!!

    ________________________________

  6. I think about Phoebe and check this blog every day hoping for an update on her health and status. I hope that all is going according to expectation, and that y’all are able to have at least a moment of rest during this time.

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