Nov21

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We are at Children’s and Phoebe is much better. Her sodium is trending down and we might be home in time for kickoff and thanksgiving with our family tomorrow.

So thankful for Phoebe and her little life that has taught me so much. Thankful for an amazing wife, three beautiful, healthy boys and my family. Thankful for a wonderful church and YWAM family. Most of all, thankful for the grace and peace of a good God…..oh and did I mention football!?

Go Texans!

-nathan

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Filed under Uncategorized | 14 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

14 responses »

  2. Love and God’s blessings on all of you this Thanksgiving. Hope Phoebe does get to go home and share this with all of the family. Hugs from Jerry, Jeanne, and LeAnna. Have a wonderful day.

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  5. Fantastic news!! Good to see her picture too…..she’s such a strong little girl and such a blessing. I hope she gets to go home and you all can enjoy Thanksgiving together. Thank you for being so good with updating all of us. Your family is always in my prayers.

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  6. 🙂
    Love that update. Go Texans (I can say that since there’s no Canadian teams playing )
    Oh ya and Nathan your an amazing Dad, man of faith and one of my favorite Texans. Hope you and your girl are home for kick off.

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  7. Phoebe continues to teach us all, doesn’t she? She has touched so many lives in probably ways you, Amey or Phoebe herself will never know. I hope you all have an awesome Thanksgiving and she is able to be home with you all. Blessing and love to you. Continuing to pray…

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  11. Happy Thanksgiving to you all. Thanks to the Lord for all HE has provided all of us this year.
    Thanks for Phoebe our little angel that showed all of us how to fight a good fight and come up on top. How to really sing, dance, smile and pray and truely enjoy life. The little girl that inspired many of us including me in the toughest time of my life. The little girl who made me see life differently and taught me how to really pray.
    Phoebe, little one I am thankful for you. May God bless you all.
    Love much,
    Priscilla

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  14. Trust Him. He will get you home. And the trials of the trip will be lost in the joys of the feast. Now if you’ll excuse me, I’m a bit tired from the journey and it feels good to rest.

    “For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. 2 Corinthians 4:17”

    I received the above from Max Lucado today and it just seemed so appropriate. God Bless you all!

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