Quick Update

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I just wanted to stop in and post that Phoebe is doing okay. It has been a busy couple of weeks and I am wanting to post something more heartfelt about my grandfather, but time hasn’t allowed yet.

Phoebe is a little emotional and having stomach pain right now, most likely from one of her chemo medicines called Doxorubicen. She was up most of the night with pain and when I got up at 6:30 this morning, Nathan had her in the bathtub trying to soothe her. After a round of intrathecal (spinal) chemo and Doxorubicen, it is usually just a matter of days before Phoebe needs a blood transfusion and/or platelets. It just knocks her out.

Friday is Deacon’s birthday and I am praying that we are not in the hospital with her getting a transfusion. Thank you all for praying with us!

-Amey

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

One response »

  1. Father, we just lift up Phoebe to you and the entire Fair household. We ask that you would bless Phoebe with a good day on Friday so that Deacon can have a wonderful birthday, that his life can be celebrated with fun and pizazz and for the entire family to get much needed rest and relaxation. Lord, we know that you are the strength giver and I’m sure Nathan and Amey so often feel fatigue and weariness in soul and body. I pray for your Spirit’s power to uphold them and use them in the midst of this difficult time. I pray that you would enable them to minister and miraculously meet the needs of all of their children and that you would minister to them. Thank you Lord that you are their care giver, love of soul and body and you cherish them, your precious children. Thank you Lord that your plan is for good and you will use these times for good even when we can’t see how. We continue to ask for healing for sweet Phoebe. We believe your love covers her and you love her and have a plan for her. Thank you for her life and all that she represents to the world. Thank you for her beauty! In Jesus Name.

    Love you guys!

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