Phoebe is still having a rough go in the hospital. Yesterday there was a mix-up in her orders and her Hydrocortisone was dicontinued. Well, Phoebe is cortisol dependent and can not live without it, so by yesterday afternoon she was floppy, distant and fading. Her heart rate was accelerated and her sodium was very high and thank God they finally figured it out before she crashed. Needless to say it was a rough day.
Her body is still not absorbing Potassium which is most likely a kidney issue, and that could continue for weeks, or months, or years or just suddenly correct itself. I constantly have to remind myself that people can live with potassium supplements but they can not live with AT/RT. People can live with Diabetes Insipidus but they can not live with AT/RT…etc.etc. Chemotherapy is a double edged sword.
Right now she is receiving her second blood transfusion and yesterday she received platelets. Her ANC is 40 today which is still pretty low, but at least on the upswing. We will be here for a few more days until her counts recover and she is in better shape. Thank you all for continuing to pray.
Psalm 72:12-14 NIV
For he will deliver the needy who cry out,
the afflicted who have no one to help.
He will take pity on the weak and the needy
and save the needy from death.
He will rescue them from oppression and violence,
for precious is their blood in his sight.
Praying for you Phoebe!!
As a mother of three (now adult) daughters…I simply cannot imagine how difficult this journey has been for you all. Just wanting you to know…that I am praying for you all from the compassion of the heart of a mommy. I will continue to lift you all up for the surrounding of peace and comfort and to stand for complete restoration for Phoebe’s little body.
Prayers every morning.
Amey, standing with you in prayer! Lean not on your own understanding, but in all your ways acknowledge Him. Lord, we do acknowledge you. And ask that you help us to keep our eyes and thoughts focused on you and your ways. Please come close and rest your hand of grace, comfort, and provision on Pheobe, Amey and their family.
Still praying for you guy and Phoebe. You guys are my champions!
Amey, you don’t know me but I came on board praying for Phoebe through the group “pray for Eva-Camille Pliego.” I think of you and your family often and pray for Phoebe and all of you daily. Praying for continued healing for Phoebe and all of you as you share in her pain. Also praying God’s blessings on Deacon on his birthday! God bless you and keep you and give you peace.
Praying for Phoebe to recover quickly and fully. Peace to you all.