A Little Bit About Phoebe’s Mom

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Just wanted to let you all know Phoebe was stable enough to come home tonight. Amey will write an update after she gets some good hibernating done.

It’s often said about the matriarch of a family how she holds everything together and is someone who everyone can lean on and count on. The rock that holds the family together.

I have never really thought about Amy like that before. I have always thought she was an amazing mom and a great wife, but over the last couple days I have seen her in a different light. This experience has transformed us all in so many ways. But I feel like I have been watching Amey change from a young mother to something so much more.

It’s hard to explain, except to say that when it was just me and the boys here this week, there was a palpable sense that our nucleus was missing. Her foundation in the Lord and the truth of what that means practically in daily life, while going through hardship, has been an encouragement to me and so many others. Warts, pimples and all, she has not been afraid to share her faith, struggles and fears with the world.

And let me tell you, it’s not easy putting yourself out there for the general public to see your struggles and fears, your imperfections. I certainly don’t do it. I prefer to remain silent during the hard times.

Beyond theology, doctrine and saying or doing the right things, Amey has embodied the reality of what Christ manifest in our lives looks like. It’s not always perfect and it’s not always pretty, but at its root is love, peace, joy and most of all brings glory to God.

-Nathan

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

10 responses »

  1. Welcome home, Phoebe and Amey! Nathan, your words are so true! That woman you married is amazing… and how she has chosen to trust God in this season of her life and how she has shared your family’s struggles through words has challenged me and so many others to do exactly the same. And our constant prayers for Phoebe and all of you have kept us so close to God and recognizing who He is and who He wants to be in our lives. My prayer from the very beginning has been that God would be glorified in all of this. And He has been! And He will continue to be!!
    Lots of love,
    from the Frankes

  2. Nathan,
    I’ve been following and praying for you all since the beginning..I don’t know
    you but I feel as if I do, and to myself, I call Phoebe my baby..always wondering daily how she is doing..You and Amey have been such an inspiration to me, and
    have taught me so much about faith and grace. Thank you both for being so
    transparent and real. There are many that pray for you all constantly. We will continue this assignment, and stand with you. Words cannot even express how much you and Amey bless me.
    Mary

  3. What a cute picture of Phoebe. Both of you are such inspiration to me. Raising our second family, Jeanne, at our age is such a joy–and often, too, a challenge. I constantly learn from you–reminding me that the greatest of these is love.

  4. First, like everyone else, the photos of sweet Phoebe are always so inspiring, she simply is a earthly little angel.
    Second, I have a few very dear people battling against end stage cancer, and I find such strength when I read your bogs. Its raw, yes, but its so hopeful, open and endearing. I can’t imagine the amount of strength and faith it takes to get through each day, but i believe you are serving the Lord more fully than you will ever imagine. Just hold each other closer and know, their are so many of us out here raising you up in prayer and loving you, and begging that each and everyday you feel the love of God surrounding you all and protecting you on your journey. Peace and love to each and everyone of you,
    Love, a sister in Christ,
    Debi

  5. Nathan, Thank you for step across your comfort zone to allow us to come along side your family…for sharing your heart and the reality. Life is messy but as you say full of the grace of God. We are praying. . .thanking the Lord that Phoebe is home. . .asking for his hand of rest to be on Amey, for His encouragement to invade your hearts and for his continued provision on all fronts.
    love — Jeannie

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