Dec22

Landmark Day!

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Today Phoebe walked down the hospital hallway without a walker for the first time since February. She is doing very well and finished her round of chemo today. If everything goes well we’ll be home tomorrow. What a difference a week makes.

-nathan

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Filed under Uncategorized | 25 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

25 responses »

  1. Wonderful news! What an amazing and determined little lady. So happy for her, and hoping you do get to take her home tomorrow. God’s peace and blessings to you all,

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  10. Wonderful! Praise God!! Praying that Phoebe’s counts stay where they need to be and that you and your family have a very Merry Christmas!

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  15. Praise GOD!!! We hope you all have a very Merry Christmas and great New Year. We pray your Christmas is spent in your new home and away from the hospital. We love you.

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  18. Seeing this picture of Phoebe walking unassisted is probably going to be a highlight of Christmas for a lot of us around the world. Another Christmas miracle joins the ONE whose birth was God’s gift to the world, His SON, that we may have eternal life!
    What a wonderful joy to see this beautiful baby girl, her life a miracle gift from God, walking down that hall on her own power! What a blessed Christmas for the Fair family, and all of us who have loved and prayed for Phoebe this past year! God is good every day, but some days just seem to shine brighter! Thank you Amey, Nathan, Benjamin, Averic, Deacon, and Phoebe for letting Tom and I share this journey with you. Our prayers continue.
    We love you!
    Carol and Tom

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  22. Hooray Phoebe!! Offering thanksgiving and praise to Christ Jesus for strengthening Phoebe and delivering this miracle. Praying her home TODAY too. Merry, happy, lovely Christmas to y’all.

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  25. HI PHOEBE, MY CHRISTMAS WILL BE SO MUCH BETTER KNOWING YOU ARE FEELING AND DOING BETTER – YOU ALWAYS DO YOUR BEST AND LOVE YOU AND YOUR FAMILY AND HAVE A BLESSED CHRISTMAS TOGETHER WITH YOUR MOM AND DAD AND BROTHERS.
    WITH LOVE, SUZANNE

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