Jan11

Latest Phoebe Pictures

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Beautiful girls!

Beautiful girls!

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phoebe usisng her new found walking ability.

phoebe usisng her new found walking ability.

wating to be admitted for chemo.

wating to be admitted for chemo.

Phoebe getting settled into the hospital on tuesday.

Phoebe getting settled into the hospital on tuesday.

The play room at the hospital opens at 10am. Starting at about 6:30am Phoebe insists on going down to make sure no-one is there yet. On this occasion, she wanted to wait for the workers to show up so that we didn't miss em'.

The play room at the hospital opens at 10am. Starting at about 6:30am Phoebe insists on going down to make sure no-one is there yet. On this occasion, she wanted to wait for the workers to show up so that we didn’t miss em’.

Filed under Uncategorized | 6 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

6 responses »

  1. They are all precious pictures of your sweet child, but the last one of her waiting by the playroom door is priceless. I love, love, love it!! I think what I love so much is she feels like playing so much she will sit in the floor and wait! God is so good! 🙂

    Brenda Rhodes-Sent from my iPad

    Reply ↓

  3. Such a cute little snow bunny! It is amazing to look at these
    pictures and to think back to pictures throughout the last year! I have to say she is a most adorable little girl!! Yea, God!

    Reply ↓

  4. Hallelujah!! Such progress your Phoebelicious has made!! Walking, not only inside, but outside too! Enjoying the snow even! I love her and you all!! Continuing to pray for you all! ❤ from a praying Nanny Carol in PA.

    Reply ↓

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