Still in the ER

Standard

It’s 9 am and they are still in the Emergency Room. It has been a long night, with 3 attempts to access her port with no luck. They gave her an IV in her hand, only to have it quit working a short time later and had to put one in her other hand.

Her sodium level is fine, but her hemoglobin is low so she is being prepped for a transfusion with Benadryl. Her blood pressure is low and they are going to keep her in ER until they decide where to transfer her, either Oncology floor or ICU.

Thank you all for praying for our girl.

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

15 responses »

  1. Praying for Phoebe and Nathan….and extra prayers for Amey and the boys who are not with them 🙂 Prayers for Phoebe’s care team, too!
    Blessings and Hugs for all!
    Peggy

  2. Praying for extra grace and perseverance for Nathan and Phoebe, steady IV access, safe blood transfusion, miraculous healing from fever and any infection, wise, caring doctors and nurses, quick transfer to the floor, and a brief admission. We love you all! Please know that you are in our thoughts and prayers!
    Thank you for keeping us updated!
    ~Jacqueline

  3. Praying for you all. Know that God is holding Phoebe in his loving hands and nothing will happen to her that He doesn’t already know about. God loves Miss Phoebe even more than you do. He died for her! I’m especially praying for them to access a robust vein to get that IV started!
    Hugs from Arlington, TX!
    Suzy

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s