Low Hemoglobin Again

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Phoebe has had more fever today and her hemoglobin dropped back down to 7 despite her blood transfusion yesterday. She got another unit of blood today and will hopefully feel better soon. This round of chemo has really squashed her blood. Please pray that she would be able to maintain a decent hemoglobin level so that she will feel well enough to eat. Thanks everyone..

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

7 responses »

  1. Father,
    I thank You for the internet and for the ability to pray for each other here. Lord, You know why Phoebe’s hemoglobin is so low. Father, soak Phoebe in Jesus blood and give her a blood transfusion with the blood of Jesus Christ. Let the fire of the Holy Spirit burn through Phoebe’s body and remove this cancer and the bad effects from the chemo. Thank You Lord!! In the name of Jesus I pray. Amen.

    Praying and praying

  2. Phoebe has such a sweet heart as she goes through all of this. Your whole family is amazing. I thank God for all of you….

  3. Our Dear Heavenly Father, please let this latest transfusion take hold and make it help Phoebe to feel better enough to eat. We ask for Your strength today and Your Hope for tomorrow. Amen

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