Feb13

Back to the Hospital…

Posted on by
Standard

She lasted about 36 hours at home. Phoebe has had a rough time ever since we got home Monday Night. Last night she wasn’t feeling well with lots of headache and tummy pain. She had a low-grade fever all night and this morning went to above 101 as well as vomiting.

She doesn’t have an immune system right now so she is being admitted in Dallas and will receive intravenous antibiotics.

Amey is with her this time, so the boys and I are bachelors for a while. I see delivery pizza and lots of old school black and white twilight zone episodes in our future.

Please lift up Phoebe in your prayers as she is feeling really crummy. Praise God for the good MRI results and a day-n-a-half of home time!

-nathan

20130213-120234.jpg

Filed under Uncategorized | 12 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

12 responses »

  1. Continuing to Prqy for you all. Thanking God for clear MRI. Believing the Victory to continue n added supernatural strength for you and the family.

    Reply ↓

  2. Hi Nathan — praying with you for sweet Phoebe girl and the whole family. And praise God for the clean MRI results! Holding you up in prayer — Jeannie

    Reply ↓

  8. What a BEAUTIFUL picture of father and daughter. Nathan you are such a wonderful dad and she looks so loved. Y’all are such incredible parents.GOD BLESS Y’ALL AND YOUR SWEET FAMILY.
    Marilyn in TN

    Reply ↓

  9. What a magnificent photo of a father’s love! If only poor little Phoebe wasn’t feeling so awful:(( I was so happy to hear about her good MRI results, I’d been waiting with bated breath since your last post! I hope she starts to feel better soon and her immune system comes back in quickly. Poor darling:( lots of love and thoughts, Michelle from Perth, Australia.

    Reply ↓

Leave a Reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s