She’s Feeling Good!

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Phoebe feels better each day that her counts come up. She has spent the day toddling around the house playing with the cat, kissing her dog, snuggling her brothers, laughing, dancing, singing “Ho-Ho-Ho-Hosanna, Ha-Ha-Ha-lelujah, He-He-He-He saved me and I’ve got the joy of the Lord!”

I keep thinking that this will be even more commonplace when chemo is over and she ALWAYS feels this good. I can hardly fathom life without chemo, but we are all really excited that it is coming so soon!

Phoebe will begin her last chemo treatment on the 26th. She will have intrathecal (spinal) chemo and it will be a tough round. And then we will leave the hospital and BE DONE! Ahhhhhhhhh!!

I wish she could understand that this is IT! I am so happy for my sweet girl, just knowing that life is about to be a lot more simple and enjoyable for her. Needless to say, there is a lot of excitement going on around here and we are beginning to dream again..and plan, and look to the future, and that feels good.

Last night we were blessed to have a dear lady from church come volunteer to spend the night with Phoebe so we could get some rest. Phoebe has never met a stranger, so she loved on Miss Linda just like she was family. Tomorrow we are meeting with a social worker about getting some night help. Please pray we are accepted this time and it goes through.

Thank you for all of your prayers and love,

Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

15 responses »

  1. I am so excited right along with you!! I’m so glad she’s feeling so good. I’d love to hear her singing! One more treatment!!!! Sooooo very exciting! I pray you will get approved for the night time care.

  2. We are so excited for you guys!!! Praying for favor with the assistance and for someone who loves Jesus and who will love Phoebe! Love you guys and rejoicing as we look to the light in the midst of the darkness.

  3. Fair family….we are so excited for all of you and ESPECIALLY Phoebe!! Praying that the last round is an “easy round” 🙂
    Will be praying that you are approved this time for the night help!

    BLESSINGS,
    Peggy

  4. Yeah!!! The finish line is in view. Our God is faithful and true.

    I love that song she sings, though I’ve never heard it, I bet it is best to hear a little miracle girl sing it!!!

    Please keep me posted… I’m waiting for the book to come out.

    God Bless All!!!

  5. Praise God! I am so glad she’s almost done with treatment. What a precious little girl God gave the Fair family. She will be a mighty warrior for God one day & what a testamony you allwill have. God bless your sweet family.

  6. So glad to hear about Phoebe. God bless the little fighter and the family. Praying for her as well as the whole family. God will show His glory through her. I wish I could fly from India to your place and be there to help out the family. But God will provide. Be blessed!

  7. so happy that you are near the new beginning for phoebe and your family. God Bless you all for all the hardships you have had to endure. Only good things to come!!!

  8. I’m thanking God for Miss Linda and so many like her who have helped my granddaughter and her family through the tick of this journey. God’s provision has often been more than we could fathom. His people rally round and His touch of love is felt in the here and now. Thanks to everyone who has helped and prayed. In His love, Julie

  9. This post makes my heart happy. We are still praying for you all continually! Specifically praying today for mtg with social worker… Love to you all!

  10. Continued love and prayers always sent your way. You and your family are such an inspiration. God bless you as y’all move forward.
    Marilyn from TN

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