May4

Look at Me

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Here’s my beauty….sorry it’s a little late :/ She’s doing great!

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Filed under Uncategorized | 13 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

13 responses »

  1. Beautiful little girl! She has taught us all how to fight…and God has shown us all he is taking very good care of Phoebe! God bless, and keep you all….and have a wonderful weekend…a great, healthy and happy week ahead!

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  8. How beautiful Phoebe is. Praise The Lord for seeing you through this hard time and blessing you with the strength to be the rocks you have been. What a blessing it has been to see each step of progress and to have been included in lifting your family up in prayer each day. Thank you for your posts.

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  11. HI PHOEBE AND FAMILY,

    I LOVE EVERYTHING ABOUT YOU PHOEBE – YOUR SPIRIT – YOUR SMILE – YOUR JOY – YOUR STRENGTH – YOUR EXAMPLE – YOUR LOVE – YOUR BEAUTIFUL FAMILY – YOU ARE ALL PRECIOUS IN HIS SIGHT!! THANK YOU FOR SHARING YOUR JOURNEY SO WE CAN PRAY FOR PHOEBE AND YOUR FAMILY. YOUR FAITH HAS BEEN AN EXAMPLE TO ME AND HAS GIVEN
    ME A STRONGER FAITH AND TO TRUST GOD IN THE DARK. I AM SO THANKFUL FOR YOU PHOEBE AND YOUR FAMILY. THE LORD BLESS YOU ALL.

    WITH LOVE, SUZANNE

    Reply ↓

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