Standard

This is what we’ve been up to…..

IMG_2731 photoshoped

 

IMG_2766

 

IMG_2761

 

IMG_2759

 

IMG_2756

 

IMG_3284

 

IMG_2746

 

IMG_2775

 

IMG_2742

Phoebe is wonderful! We have been very busy as you can see, doing all of the things we love and have missed dearly while Phoebe was in treatment. Nathan has been working on our vision statement and timeline for the 3rd world agriculture training program we are developing and I have been busy with home schooling and working in the garden. We just returned home from our YWAM annual staff conference in Grapevine and we had a great time. The boys attended kid classes while Nathan and I enjoyed a weekend of good teaching and fellowship with our fellow YWAM’ers.

Phoebe had an Oncology check-up and an endocrine appointment last week and everyone was very pleased with her progress. Her hair is so sweet and fuzzy, like a little baby-head I just can’t kiss enough. She has stopped eating during the night which is an answered prayer and she seems to be sleeping better the majority of the time. Weaning her from the ng tube and teaching her how to drink despite her lack of a thirst mechanism is a work in progress. Ben and Averic both have birthdays coming up next month and then we head to Florida at the end of June for a Lighthouse Retreat for pediatric cancer families. It is so freeing to be able to travel again and make plans without worrying about Phoebe’s condition. I will never take that for granted again.

Thank you all for continuing to pray for and think of our family. We are in a nice season and enjoying living again outside the walls of the hospital.

Love, Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

24 responses »

  1. What a blessing your posts have been – the faithfulness of God in hiding you under His wings during your season of difficulties. Your faith has inspired me and caused my faith to grow as I’ve followed your blog and seen how God has answered prayers and brought you through so much. I am grateful that you took the time to share your heart.

  2. Praise God!! So glad that all is going so well for everyone in your family. Many of us take life for granted and when we are faced with the many challenges of illness we are just taken aback by what we can’t do and how it confines us so much. I am so thankful that God was with you every step that you took. Many do not have the power of the cross, and I do not see how they do it!

    Enjoy this summer as you work in your garden and play with your kiddos! Our God Reigns!!

    God bless you all,
    Shawna

  3. Thank you, GOD for bringing this family through this! WE are so thankful for precious Phoebe’s healing…and thankful for this wonderful family that has worked together to fulfill the plans that you have for them! ! God bless you all…have a wonderful summer!!!!

  4. Praising God for a Positive Phoebelicious and Fair family report! Your garden looks very yummy 🙂 ENJOY your summer OUTSIDE!!

  5. Looks like you’ve been very busy. Love the garden and the precious smile on Phoebe’s face. 🙂
    God bless you all and have a wonderful summer!

  6. Oh, Praise God! What a blessing to get back to your groove! We love you and think of the entire family regularly! Hugs to all of you! One of these days we want to visit! Our boys would have a blast together and our girls would love getting to know one another.

  7. I’m so happy for all of you. We serve an awesome God. I know He will keep the blessings coming for your sweet family for years to come.

  8. WHAT A NICE SURPRISE TO CLICK INTO THIS GOOD NEWS AND VIEW PHOEBE AND FAMILY.
    I AM SO HAPPY TO SHARE IN YOUR JOY – THANKFUL FOR YOUR SHARING AND UPDATING
    YOUR PLANS. YOU WILL ALL REMAIN IN MY DAILY PRAYERS.

    WITH LOVE, SUZANNE

  9. Wonderful! Loved seeing your bountiful garden and chickens, & especially enjoyed seeing Phoebe looking so joyful. I will continue to pray that “normal” becomes the Fair Family’s daily routine, and that God will provide many healthy years for all of you. Thanks for keeping us all updated!

  10. There is not a day that goes by that I do not think about each and everyone of you. We continue to pray for each and everyone one of you.. Blessings. Tricia

  11. The garden is amazing, looks like healthy, growing plants! So good to hear all the normal, and wonderful things you are now able to do. So glad Phoebe is finally feeling better and you are able to enjoy time with the whole family together.
    Blessings!

  12. It is wonderful to hear the normal pattern of life returning! Thanks so much for keeping us posted, and letting us learn from your journey. Blessings!

  13. Hooray, hooray, hooray! A beautiiful summer lies ahead, and we know God will bless each moment for y’all! Enjoy the big and small moments, and remember you are all still close in our prayers. Thanks for the newsy update and photos.

  14. Great to see these pics and update. My Zion was just asking about her tonight, will be sure and show him tomorrow.

  15. Thank you for the update. We praise God that you have made such progress in your training and Phoebe’s health.

    Blessings!

  16. We praise the Lord with you and along with so many, many others! So glad for the GOOD REPORT update! God bless you all and keep you safe and well!
    Linda Fagan, Prayer Minister, Bono Baptist Church near Cleburne, Tex.

  17. Wow, I have been following Phoebe’s story and your family thru Summer’s posts…and it just makes me smile seeing all the wonderful things happening for you all! Praise God!! You guys are an example of the power of prayer. I will continue to pray for Phoebe’s as well as your families healing. its so great to see you all of you happy and cheerful! God bless and Godspeed!!
    Christy Hernandez

  18. Praising the Lord for being with you through it all and in this sweet time. Your friend down the road in Mt. Vernon who loved Zig, Anne Adams

    ________________________________

  19. All the news is awesome! I was especially excited to hear about Phoebe not eating at night and sleeping better…that was always at the front of my mind while praying.

    We all share in your happiness and praise the Lord with you! Thank you for keeping the updates coming…love hearing any updates from you!

    Much love from Ecuador.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s