Jun16

Please Pray for Phoebe

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Phoebe is having a rough day. Phoebe had fever last night and was admitted to the ER. After sleeping most of the day in the ER, her doctors admitted her to the oncology floor. She is having a hard time staying awake and her electrolytes are in bad shape (potassium is very low, chloride is high and sodium is very high). Her kidneys seem to be acting funny as well.

We are not certain what is causing it, but at this point sepsis is a very real concern as she is still immune compromised to some degree. For those of you who remember, when Phoebe went septic last year, this is how it began.

It is very strange to feel that old familiar fear and worry spring up in my gut. After 3 months of Phoebe doing so great, I guess I started to let my guard down. Our Phoebe has and always will be in God’s hands and we trust Him fully. As always, “we walk by faith, not by sight.”

This was the first time she has been back to the oncology floor since her last chemo in March and it is obvious that Phoebe is still very much loved…

Please pray for our sweet girl…

-nathan

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Filed under Uncategorized | 11 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

11 responses »

  1. Copied and pasted your note to my facebook page requesting prayers for our precious little girl. God bless, and keep you all…and God bring Phoebe through this with flying colors!!!

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  3. May the Holy Spirit pour out strength for Phoebe to fight and heal! Praying her levels even out, for no infection, and for complete restoration for your fighting sweetheart. Prayers for continued peace for y’all too as you walk by faith.

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  6. I am sorry for the news, but I trust God for her healing. Hope she has a quick turn around and rest assured, she will be in our prayers. She is still – to all of us- A MIRACLE.
    I love and admire you and the whole family.
    Blessed Be the Name of the LORD!!!
    LaNell in Jacksonville, TX

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  7. My heart just broke, seeing the picture of Phoebe with her puffy cheeks and the new fuzz on her head! She looks so tiny and vulnerable – it’s good to know she’s in the Hands of the One who loves her more than we could. Praying that her doctors can get things under control without Phoebe getting sicker. Praying for you Amey and Nathan, for the stress you must be feeling – and praying for the boys, who miss their sister so much when she’s away. God be with you all. Amen.

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