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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

36 responses »

  1. A family that honors and loves The Lord is a beautiful thing! What fantastic pictures! Thank you for sharing. Brings tears to my eyes……Praying……

  2. Fantastic pictures! God’s blessing on you all. Our prayers are with you. You are in our thoughts constantly. We hop you have a lot of good days ahead. With our love in Christ.

  3. Beautiful! Celebrating Phoebe’s life this special day – She is a Beautiful Gift. Prayers and thoughts with you always.

  4. Thank you for sharing these wonderful pictures of the circle of love that is the Fair family. You have allowed so many people to walk with you through every parent’s worst nightmare, and witness your rock solid faith and trust in God. There is healing for Phoebe, no question about that, whether in the arms of her family or the arms of Jesus. My prayers and love, along with Tom’s, are with you daily.

  5. Precious!

    Cheri S Perry

    “It’s your life, your one and only life- so take Excellence VERY personally!” Scott Johnson

  6. Thank you for sharing your precious family photos! They are awesome. Prayers and prayer requests to others continue. I will pass this along to the others, so they can see your awesome family! GOD bless all of you! Prayers for all of you!

  7. I have two daughters with the Lord. One who was just 6 days olds and one just shy of 18. God carries Us parents In the palm of his hand during such times as this. The joy of our children is a gift given for eternity . Precious are these in His sight. I pray for your family….His grace covers you and gives you strength . We are just passing through this life leaving footprints of His love on others. Your precious phoebes is running around the world leaving those prints on us all. One’s destiny is in His hands and we stand in awe at the impact of your story unfolding before us. Run the race as to win the prize…. Little Phoebes is winning. God bless her race and yours.

  8. Phoebe is such a beautiful blessing! I am so grateful to have heard about and read her story. It has caused me to question how I am living and loving my own children. God is being glorified in such a powerful way through your sharing. My prayer for you Amey is to continue to cherish and relish in each moment you have together. You are a beautiful, Godly woman and I can only hope to be half the Mama you are. He is with you. Prayers for strength, a peace that passes all understanding, and an anointing over each of your moments together. Loving you from IL, a sister in Christ, Jo

  9. I been following your journey through one of my friends. I just wanted to say your a very strong woman Amey. You are keeping your family together and taking such a good care of Phoebe. I pray to God he shows his miricle to help her and you. Keep your faith strong and you will be alright. First step is believing eberything else will happen on its on.

    And thank you for sharing your family life with everyone else.

  10. THANK YOU FOR SHARING THESE PRECIOUS PICTURES OF YOU AND YOUR FAMILY. ALL OF YOU JUST ARE BEAUTIFUL GREAT FAMILY I AM PRAYING FOR PHOEBE AND ALL OF YOU EVERY DAY AND EACH NIGHT. YOU ALL ARE IN MY THOUGHTS GOD BLESS

  11. So beautiful, so very wonderful, to have been given such a special little girl. I am praying for Phoebe and all of you. I pray that God will keep His hands on all of you, and Phoebe is indeed a miracle little girl. May we all be inspired by Phoebe, and know that each day, is a gift from God. I do pray for a physical miricle for your sweet baby, and may God lift you all up with His loving care.

  12. I have never met any of you but you are all my heroes. My prayers are with you daily and you have changed my life. The pictures are beautiful just like each of you from the inside out. God bless you.

  13. What a beautiful family…a bunch of angels! Thank you for sharing your lives with us all…we are so blessed by your faithfulness and strength…the Lord is working mightily through you!!!

  14. Love the wonderful pictures!! Your faithfulness to your daughter and God are such a testimony of love and trust! I will continue to pray for your family as you travel down this unknown road!
    God bless!!

  15. Thank you for sharing the pictures. Beautiful. So Beautiful. God bless you all with many, many, many, many more beautiful moments. I am praying for all of you. I often think of Phoebe. And I often take her name to the Lord many times during the day. She has inspired us, me and has changed my life and the way I see things. Phoebe really has impacted us in a very special way. Thank God for Phoebe, for you both Amey and Nathan, for your family and for your work ans ministry. God has chosen the right family to take HIS word to the people in the word. I am so blessed to be a part of it.
    Thank Lord for our Phoebe.

  16. Beautiful photos, Fair family…….I’d like to thank you for the honor of being a witness to your amazing testament of faith throughout this journey with Phoebe. I believe it has had a powerful impact, not only on me but thousands of others. I will always keep you all in my prayers. Such a circle of love…………………

  17. Absolutely lovely photos! I pray Phoebe’s birthday was wonderful today for all of you!! Continued prayers for healing and precious moments.

  18. Those are great family pictures, I love them all! I love your family! I love your strength, your love for each other, you love for God, you normalness, that you are humble enough to say when you are overwhelmed, I love you appreciation for every prayer and all the support you get, I love how you cherish every day you get to spend with your precious Phoebe, and each other. and how you realize you need God’s strength every day. Blessing to you all, you are like our family member we have found through this journey. I am still waiting for God’s miracle gift to you. Love, terri

  19. Photos are a very real and present gift. Your family is a gift to all of us and we are praying for you. JESUS knows. HE sees and HE cares for you. ❤

  20. I absolutely LOVE the pictures of the entire family. I’ve printed pictures ‘here and there’ to post on my ‘prayer wall’ in my office. To have a picture of the complete family warms my heart!
    Thank you!

  21. hello. im a new follower from British Gibraltar, Europe! I just wanted to say what a beautiful family u are. the family foto above is just gorgeous and Phoebe is adorable. My prayers and thoughts are with you all. 🙂 xx

  22. I am a friend of judy & bob hendrick. I live in Texas.
    I have walked your path and pray when your sweet Phoebe is in the arms of our Savior , the whisper of his angels wings will bring you much comfort. I have two daughters with Him. Tammy …just a baby….& then my precious Jenny…almost 18. As a mother, I feel your whole experience..
    I also know by your own testimony, peace is there…just where you know it is…your faith in our Father will sustain you…it is not an easy road, but His ways are a mystery. I know that I would not know the depth of His love, His mercy, His compassion or the depth of my faith had I not been through the experiences of my walk with Him.
    The hope we have, sweet sister, is that we will hold our dear children again. We can trust them back to Him knowing He is their perfect caretaker.
    I pray His angels usher your precious Phoebe into His presence in grand style. I was in the presence of my sweet Jenny’s home going and the air was filled with the presence of His messengers. The overwhelming peace of transition from that moment 21 years ago has not left my memory. It brings me great comfort when I remember her. The memories of her life are precious and etched in my heart. The years have softened the missing and His grace sustains the heartache.
    I pray for you and all your loved ones. No mother, father, sister, brother finds this path easy. I find my comfort in his Word… Especially Isaiah 43:1-5..”but now, this is what The Lord says- he who created you, he who formed you.
    Fear not, for I have redeemed you; I have summoned you by name; you are mine. When you pass through the waters I will be with you; and when you pass through the rivers they will not sweep over you. When you walk through the fire you will not be burned; the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior….since you are precious and honored in my sight, & because I love you, I will give men in exchange for you and people in exchange for your life. Do not be afraid for I am with you.”
    Our sorrow will be turned to joy. May God continue to sustain you and your family. Your walk through this valley inspires us all. Hold on my sister,” joy comes in the morning”. Psalms 30
    Your sister in Christ.
    Becky

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