Quick Update: Back in the Hospital

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With the blessing of hospice, we took Phoebe to the ER in the middle of the night last night. Her health has been declining rapidly recently and she hasn’t eaten in days. Last night she was profusely vomiting, had explosive diarrhea, fever, heart rate was elevated and her O2 sats were in the 70’s.

Because of the profuse vomiting, even the smallest amount of meds or fluids come right back up. She is has been admitted, receiving meds and fluids through IV and is on isolation. She will be there for the foreseeable future. We will try and give a more detailed update in the morning.

As always, “we walk by faith, not by sight!”

-Nathan

“God loves us and God is not a meanie” –Phoebe Fair

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

36 responses »

  1. Praying for peace and comfort for Phoebe and family…my eyes have been opened! Sadness is in my heart but joy knowing that Phoebe has Jesus with her during this transition! Phoebe has reminded me how real our heavenly father is. Wish I could hug you Phoebe and family! I will be lifting you all up in prayer big time!

  2. On bended knee praying that our Lord Jesus will bring healing, peace, and comfort to Phoebe right now. Also praying for your entire family to feel His presence and know that He is and will continue to hold each of you in His arms. God is BIG enough to________ when everything appears humanly impossible. We won’t quit praying, we won’t give up hope….. we Love Phoebe and your family!

  3. My prayers are for peace and comfort for Phoebe, her family and all those close to her. I pray that God will heal her with a divine miracle if it is His will. He is the Great Physician and His will will be done. My prayer is that Phoebe’s pain will be taken away and she will suffer no more. Prayers are covering everyone who knows and loves this precious little girl with such huge faith!

  4. Praise God for Phoebe’s faith and understanding that “God is not a meanie”! Thank God, Amey and Nathan that you’re walking by faith that by Jesus’ stripes Phoebe is healed and completely restored – nothing missing, nothing broken, and nothing out of place, all of her chemical and electromagnetic frequencies perfectly aligned with the Word of our Living God so that she shall live, and not die, and declare HIs marvelous works to a wondering world.
    In the name of Jesus I speak strength and vigor to Phoebe’s immune system, that all the rebellious cells are destroyed to be replaced only by healthy, normal brain cells.
    God’s great peace, grace and mercy uphold you throughout this season.

  5. I continue to keep you all close in thoughts and prayer as God holds y’all tightly and lovingly in His strength that ONLY HE CAN GIVE. Love continues. . . Marilyn. TN

  6. Hello,

    I just came upon your blog tonight. I wanted to tell you of a ministry that has many many Cancer miracles (confirmed Medically). It is called ‘Grace ‘N Vessels of Christ’ Ministry. Grace used to be in CT but now lives in Texas. Look her up on Facebook under ‘Grace ‘N Vessels’ If you go to her Facebook page and private message her, she will pray for the situation no questions asked. Just send her a link to your blog and ask her to pray. She has gift of healing inside her.

    Maria <

  7. Prayers for the Lords comfort to embrace Phoebe and her family. May she find peace and joy in the Lord as He is comforting our Phoebe; May the sunshine of love and grace surround her as she battles this horrific ailment. She is a child of God and He does not make mistakes. My prayers for the healing of our souls so Miss Phoebe may reign and be with us always. Sharon, Arkansas

  8. Praying that Phoebe’s comfort can be stabilized in the hospital and she can get some relief. Love and strength to all of you. No fear….only faith….during times of darkness.

  9. Praying Lord Jesus that you be the warm blanket of comfort so needed by Phoebe and this family right now. Give them Your strength for this day and Your loving HOPE for a better tomorrow.
    In Your Precious Name, I pray, Amen

  10. having recently been through what you are experiencing with the same terrible atrt, we pray for your little angel, phoebe that she is soon stable, comfortable and not in pain. hug her tight for as long as you can. she is such a blessing.

  11. Amy, Nathan, and Boys,

    My thoughts and prayers are with all of you and Phoebe as you go through this difficult time in your lives. I hope the hospital will make Phobe comfortable and not in pain. Phoebe is so cute and adorable and one strong little girl. I have been following her journey since the beginning.

    Tammy McNear (Ben Colby’s Aunt from Maine)

  12. Praying fervently for all of you. Such a legacy from such a little sweetheart: “God loves us and God is not a meanie.” Loving you all…

    Sent from my iPad

  13. Phoebe you brave mighty child of God. I stand in God’s promise that you are healed, not gonna live by what we see or feel but by the Promise of our Lord and Savior. I ask that your Momma and Daddy and Grandparents too feel God’s love and peace, we are standing in the gap and will pray for you all. In the Name of Jesus Christ our Savior and by his Blood you are healed.

  14. Praising God for his promise that you Phoebe are covered in the Blood of Jesus and are healed. I pray father that Phoebe be released from the pain and discomfort. I pray for you’re family Phoebe, they are strong warriors and you my sweet child are so brave, you encourage us to have hope and to rely on the strength of the Lord when we don’t have it on our own. Praise you Father God.

  15. With a saddened heart that you have had to watch your precious Phoebe suffer so, I pray for comfort and peace…and change.

  16. My heart is so with you all. I wake up with Phoebe on my heart in the morning, and I fall asleep thinking about all of you and the pain you are enduring. I think the Lord is blessing many people with the opportunity to share your pain and burden so that we will pray fervently. I have shed so many tears with you over your precious girl and her suffering. You are being held up all over the world by people who don’t even know you personally, but love and care deeply for your family. Please feel my love and prayers from a little town in Kentucky.

    • May God bless this beautiful little child and her family. I send you prayers and blessings. Lots of love and hugs to all of you. I am so sorry that your little girl is suffering so much I pray things get better for all of you.

  17. praying in Kalispell, MT. As a fellow ywammer I believe God is good – ALL THE TIME! (and someday He will explain things to us when it does not make sense to us).
    I ask Him – that by the same power that raised Jesus from the grave, God will reach out and touch Phoebe’s precious little body and remove any cancer -in Jesus name!

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