Sep13

Friday Morning

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She had a rough night, heart rate too low in the 60″s, low K, receiving blood transfusion now. Infection still wracking her little body. Keep praying..

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

20 responses »

  8. Always in my thoughts and prayers, she really is a miracle. I’ve never met any of you and yet she brings me to tears with her bravery and spirit.

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  9. Carrying you and your family in my heart. Praying constantly for His presence to surround all of you in His most perfect ways. You are not alone. Thousands are praying. We love you.

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  15. Just looked at the FB page for Phoebe… over 18,000 people following and praying! So amazing. Many are sharing your burden! Including me. Praying for her all the time.

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  16. OH PRECIOUS LITTLE PHOEBE I PRAY FOR YOUR HEALING MAY OUR DEAR LORD WRAP HIS LOVING ARMS AROUND YOU AND COMFORT YOU. MAY YOUR FAMILY BE COMFORTED TOO THEY NEED OUR LOVE AND PRAYERS ALSO. YOU ARE SO SPECIAL LITTLE GIRL AND SO MANY OF US LOVE YOU TO SEE YOU HAPPY AND WELL WOULD BE SUCH A BLESSING GOD BLESS ALL OF YOU’

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  20. In the name of Jesus may we, your cadre of praying supporters, come together to tie death’s hands and cancel the assignment against precious Phoebe! She is God’s be-loved!! ~as are you, Amey and Nathan…God’s strength as you walk this out…

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