Updating is sometimes hard when we are in the thick of things. I know many of you have followed Phoebe from the beginning and are very invested in her life as well as those who are just now joining the fight. I will do my best to update during hard times.
Phoebe is having a bit of a rough time. The pressure and pain in her “noggin,” as she calls it, has been growing in intensity. She has been sleeping quite a bit, listless and doesn’t feel well enough to even sit up. To top it all off, she has high fever, which I’m sure is making her feel worse.
It has been hard to discern between what is disease progression and what are the things that we can do something about. On a positive note, her nerve pain is getting a little better and she isn’t complaining about it as much.