7:57 pm:

Phoebe’s Creatinine #’s are still the same and they are hoping to see them come down tomorrow after she has had some time to absorb all of the extra fluids she is being given. When the numbers come down they will know that she was just dehydrated to the point that it effected her kidney function. If the numbers are not changing then they will look more at the possibility of kidney damage. If there is kidney damage, it could be temporary or permanent, there are several unknowns right now.

She continues to be very groggy, zoning out here and there and incredibly overcome with sleepiness. She is also very emotional. I think tonight is the first time I have seen her cry simply out of sadness and for no other reason than she just felt sad and tired and worn out from it all. It was a very different type of cry than when something hurts or is uncomfortable. All I could do was climb into bed with her and hold her. She put her little noggin on my shoulder and just cried and cried, which in turn made me cry.

We will have to wait another day or two to find out if her blood cultures come back positive for infection. She has been fever free for most of the day and that’s a good sign. Her sodium is at 150 and they are trying to bring her down slowly once more. It is amazing how her tummy deflates when her sodium levels are good, and how instantaneously it gets hard and distended when her sodium levels are high. No one here has seen a patient present that way with high sodium levels, apparently it is very atypical.

It was a roller-coaster kind of day and I expect the next week or so will be much the same as her blood counts drop. Please pray that Phoebe’s body will have the strength needed to fight the cancer and maintain healthy function of all other organs. Also, please pray for her little spirit and her morale which seems to be pretty low right now. She is feeling down and needs a lift.

Thank you all for continuing on in this fight with us!