Nathan posted a video of Phoebe on our facebook pages if you would like to see it and haven’t yet. She is sleeping in the video, but you can see how much better she looks after the swelling has gone down and also having the tube out of her mouth.
She is still having a lot of withdrawal symptoms and was up most of the night. They explained today that her whole body is trying to bounce back from the sepsis which means that her liver, her kidneys etc. are not metabolizing at 100% and that ridding her body of the Fentanyl and other pain meds is not going as smoothly as it would otherwise. It will just take time.
Her muscle tone is also extremely lacking since she has been bed-ridden for so long so she is having trouble coughing the excretions from her lungs and her breathing is labored. They are suctioning her lungs frequently and respiratory therapy is working with her. She is unable to sit up or even hold her head up straight without it tilting to one side right now. The sepsis has been a big setback and she has a lot of physical therapy, speech therapy and occupational therapy ahead of her.
They are discussing doing another MRI on Monday or Tuesday to make sure that everything is still clear. They don’t seem overly pleased with her mental status and that makes me nervous. On the other hand, they tell me that the drug withdrawal is responsible for a lot of what we are seeing with her right now. She is just uncomfortable and feeling the effects of the weaning from the heavy meds. When she is more lucid she seems very “there” to me..gives high fives on command..has answered “yeah” and “no” in little whispers to various questions etc.
So, we just wait some more, for the drug-haze to clear, for the muscle tone to improve so she can cough up the stuff in her lungs, for her organs to get back to their normal function.
Her white cell count is very high right now and she has had fever the past couple of days which looks like infection, but given her situation, no one is sure why her counts are like this having been on antibiotics for so long. Today they are adding in some probiotics for her tummy and attempting to start back with the ng tube feeds. Please pray that goes well. She is just very weak over all right now and has an uphill climb just to get back to normal. We need grace for the waiting and protection from discouragement.
Baby steps..baby steps…