Tomorrow is Phoebe’s big moving day! Time to say adios to the ICU floor and head back downstairs. We are very excited about that.
The upper GI test administered today showed normal results, Phoebe’s intestines are in perfect working order. She had a bit of a rough day, and we still had some sodium issues which I won’t expound upon here because it will just frustrate me all over again. I think we are on the right track now and that she will get some relief tonight, so I feel good about that. She had some more withdrawal symptoms tonight so they gave her Ativan and she was sleeping peacefully when I headed home.
Benjamin (9), is having a difficult time and could use your prayers. He was weepy all day and struggling and we had a good talk this afternoon about missing Phoebe. He said he saw the picture in our living room of her smiling so big, taken just a few months ago and it just made him cry and he couldn’t stop. He misses her so deeply. My heart aches for him tonight, I’ve never seen him hurt like this over anything. I took him to the hospital with me this evening and as he was sitting by her bed he pointed to the “healthy” pictures of her on the wall and said “Compare that, to that” and he pointed at Phoebe in her bed and then he just cried, and I cried. She is doing SO much better, but she is still not really “back” and it is difficult to wonder if we will see that smiling, healthy girl again.
Tomorrow we are having a serious meeting with Phoebe’s Oncologist to discuss the future of her chemo plan in depth. We have a lot of hard questions, and the answers might be difficult to hear. Please pray for this meeting and that we would come away encouraged. I expect there will be tears. We are feeling pretty fragile right now.
Thank you all for your words of encouragement, letters, cards, gifts, e-mails, post comments, etc. We feel your love and prayers!