Goodbye ICU, Hello HEMOC Floor


Tomorrow is Phoebe’s big moving day! Time to say adios to the ICU floor and head back downstairs. We are very excited about that.

The upper GI test administered today showed normal results, Phoebe’s intestines are in perfect working order. She had a bit of a rough day, and we still had some sodium issues which I won’t expound upon here because it will just frustrate me all over again. I think we are on the right track now and that she will get some relief tonight, so I feel good about that. She had some more withdrawal symptoms tonight so they gave her Ativan and she was sleeping peacefully when I headed home.

Benjamin (9), is having a difficult time and could use your prayers. He was weepy all day and struggling and we had a good talk this afternoon about missing Phoebe. He said he saw the picture in our living room of her smiling so big, taken just a few months ago and it just made him cry and he couldn’t stop. He misses her so deeply. My heart aches for him tonight, I’ve never seen him hurt like this over anything. I took him to the hospital with me this evening and as he was sitting by her bed he pointed to the “healthy” pictures of her on the wall and said “Compare that, to that” and he pointed at Phoebe in her bed and then he just cried, and I cried. She is doing SO much better, but she is still not really “back” and it is difficult to wonder if we will see that smiling, healthy girl again.

Tomorrow we are having a serious meeting with Phoebe’s Oncologist to discuss the future of her chemo plan in depth. We have a lot of hard questions, and the answers might be difficult to hear. Please pray for this meeting and that we would come away encouraged. I expect there will be tears. We are feeling pretty fragile right now.

Thank you all for your words of encouragement, letters, cards, gifts, e-mails, post comments, etc. We feel your love and prayers!


11 responses »

  1. Praise God! The big move is going to be great and we will pray for guidance and good news for your meetings tomorrow!

    Love From Washington State!

    Cheri Perry

  2. Oh Amey! My heart just breaks for the Ben and the boys! We will continue to pray for God to comfort you all. My stomach is just in knots thinking about the meeting tomorrow. I’ll be praying…

  3. “Blessed are those who dwell in your house for they are ever praising you . Blessed are those whose strength is in you whose hearts our set on our God” I will pray for Ben , that his tender heart will be focused on God and that he will receive the comfort and encouragement that only the Holy Spirit can give. Peace and grace to you tomorrow. Love to you Amey.

  4. With you, we pray “help her Jesus”…”please Lord”

    Through tears, with you, we pray “help each one of Your Fair children … oh Fairest Lord Jesus” ….. “please Lord”

  5. It’s such a blessing to have boys with tender hearts. Praying that Ben’s heart can feel the love and the pain and still be tender. Averic and Deacon, too.

    SO good to see pictures of Phoebe Girl awake and playing.

    Keep on walking.

  6. Be strong and courageous, the Lord your God is with you wherever you go. Peace and Love to you all, Fair family!

  7. My heart breaks for Benjamin….and for all of your family. I read this today and thought of all of you.

    John 14:27
    I am leaving you with a gift, peace of mind and heart. And the peace I give isn’t fragile like the peace the world gives. So don’t be troubled or afraid.

    Hugs to all of you.

  8. Dear Amey and Nathan, You don’t know me, but I’ve been praying for your sweet Phoebe and your family. My daughter Christelle is married to Nathan Desch and as I understand it, you both have had a significant ministry in our dear son in-law’s life, some years ago! Thank you for your ministry, it is continuing to bear fruit and our daughter and grandbabies are being blessed because of it. We sure do love Nathan and I wanted to thank you for the godly influence you had in his life. He is a blessing to our whole family!
    I will continue to lift you all up before the throne of God, That God will raise Phoebe up strong and she would be a living testimony of the greatness and power of our risen Lord. Praying for your sensitive and loving boys especially your Benjamin, that he and they would know the sweet presence and hug of God. That their weary and sad hearts would be encouraged through the loving ministry of the Holy Spirit. And for you dear Amey and Nathan – that you would know and experience the loving hands of Jesus at work, that tomorrow as you enter that room for your consultation with the oncologist that you would see the finger prints of God everywhere you turn.
    Prayer is such a mystery, but I know that as I whisper you names to the One who sits on the Throne, His hand is moved on your behalf. I don’t understand it, but I’m so grateful. Blessings on all of you.
    In His majestic name,
    Karen Ames

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