Just a quick post before I turn in for the night…
Phoebe and I had a great day together, she was awake most of the night and she kept me on my toes playing ball, putting her jewelry on, coloring, and watching Backyardiagans. She spoke so much more last night than I have heard her yet. It was awesome. I didn’t even mind that I only got 1 hour of sleep, we were having so much fun!
When morning came Phoebe decided it was time to get some shut eye, and there I was..still awake with the nurse and the day just getting started. Such is life with Phoebe the nocturnal. Nathan came up for Phoebe duty tonight and we had dinner together before I went home. Nathan’s Dad is here to help out this week which is a blessing for all of us.
Her PICC line was removed today, so she is back to just having her port which is nice. Just 2 weeks ago she had lines in both hands and feet and a central veinous line in her groin. I am so thankful for where we find ourselves today! Our goals for going home are: successful ng tube feedings, breathing well and oxygenating well, and the biggie; sodium. Right now she is having a lot of sodium fluctuation which she can’t do if we are going to take her home. She needs to be on a predictable 12 hour schedule without swinging between high and low sodiums. Please pray for all of the above.
Thanks ya’ll for continuing to stand with us through it all.
I love all the pictures and hearing of her improvement each day! You are all my heros 🙂
Praying for continuing to heal so she can go home. Such a beautiful little girl, she always looks so cute.
Oh how marvelous, oh how wonderful and my song shall ever be, oh how marvelous, oh how wonderful is my Savior’s LOVE for me! Our God is an awesome God! He will never leave or forsake us! All the way my Savior leads me….and on and on – so much to praise Him for, even in the midst of the storm! I hope the wisdom we have all learned as we pray this journey with you opens our eyes to everything large or small that He does for us. It is such a joy to hear about Phoebe becoming Phoebe again. I’m glad you are more rested and y’all have been able to regain your balance after the roller coaster ride you’ve been on since the first of the year – love the image of the all night parties, they are so worth it!! Love y’all!
Get some sleep Mama Fair. Praying for stable sodium.
She looks so much more alert and like herself. Great photo of her and her Daddy!!! Glad for such a good day. “Praise the Lord the king of heaven, who like me His praise should bring. Ransomed, healed, restored, forgiven…” Praying on…
So glad to see Phoebe’s improvements. May God bless you and keep you. Prayers to your entire Phoebelicious
So happy and atoll praying!
Phoebe looks absolutely beautiful!~ What a comeback kid!~ Our God is so good!~ Praying for you and Nathan and those boys Amey that you will continue to find strength and see and feel God’s amazing love for you and those kids – especially Phoebe!~ Love and prayers form IL!~ Marcy ~
Wow! Phoebe looks so good! Continuing to pray and pray that she will make it home and soon.
Thanks for sharing these pictures.
It is hard to believe that is the same little girl that was in the ICU just last week…….she looks amazing. God has created such wonderous bodies that can withstand unfathomable horrors and come back looking like that precioust child. It truely is remarkable. I am so thrilled for the boys, to be able to see her alert, playing, and like the little sister they miss so much. I pray that she will be able to go home……for Easter…..that would be grand. Love to Nathan…..Mrs. H
She looks so good here. It looks like she is really gaining the strength back in her neck. I love this picture of her with Nathan. I am rejoicing with you for your little nocturnal girl. Having the opportunity to play with her all night after all you’ve been through seems like such a great reason to lose sleep for a change. Praying God’s continued strength for all of you and for Phoebe’s complete healing.