Phoebe’s Message

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Below is a message from Phoebe.

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

48 responses »

  1. Our pleasure, Phoebe! Thank you for sending us our Phoebelicious Message!!
    God bless and keep you, Phoebe!

    Peggy & Mike

  2. Oh, how precious!! Thank you so much for sharing your special girl with us.
    That has to be the cutest little mouth I have ever seen.
    I just walked away from a program on TV because I did not want to cry.
    Well, here I am anyway, but it is tears of wonder at a big, big God and a little miracle called Phoebe.
    I love all of your family and still pray everyday for her healing and your family’s peace and strength.
    Way to go, Amey. Watch her water and all the “small” stuff that makes such a difference.

  3. I love praying for you Phoebe!! I love praying for you and your mom and daddy and your brothers too! You are a miracle Phoebe. I was a miracle almost 50 years ago. The doctor’s told my mother and father I would not last through the night. At that time they wouldn’t let parents stay in the hospital with their children or with their spouses. So my daddy made his way home alone to their house and cried out to God. He was not a Christian then, but he promised God he would raise his little girl up in church and teach her to be a good girl. The next morning, much to the doctor’s surprise I was still alive. Tiny but fighting with everything I had. The doctor’s told my parents I probably wouldn’t develop properly and not to put to much hope into this. Well, 8 years later my parents gave their hearts to the Lord and a month later that little girl, me, gave my heart to the Lord. So I KNOW, I serve a healing God and you, Phoebe are a miracle!!! God bless you Phoebe!!

  4. Thank you so much for that message!!! Oh if only I could squeeze her tight– Our God is such a great big God and he is so working hard in all of our lives! I LOVE seeing how he is working in the life of Phoebe, and your whole family!!!! Love to you all!!! Angelica

  5. Phoebe you are amazing! In your own words a MIRACLE! I pray that your body will continue to heal and that you and your family willl continue to feel God’s touch and presence in this time!

  6. Oh this made me cry! Bless her precious heart! We ARE praying Phoebe… every. single. day. We will not give up until you are well and whole, sweet baby girl. We are just begging God for your health and wholeness. On our knees for you…

  7. Oh my. So. Precious. I just want to reach out and hold her and squeeze her tight. Grace and peace be with you all.

  8. Yay Phoebe, keep it up princess!!!! That was adorable and we loved seeing her sweet smile and hearing that voice. Such an amazing little girl she is. We continue praying and fighting right along with you. Love you Phoebe Fair!!! The Williams Family

  9. We are praying unceasingly for Phoebe. This is absolutely precious! I don’t know you but I keep up with Phoebe’s daily triumph’s and struggles through Cally. May God’s grace be glorified through Phoebe and your family. Blessings ❤

  10. She is really so precious & sweet. Thank you for “sharing” her. I’m praying every day for her healing.

    Rebekah E from Kalamazoo, MI

  11. Our pleasure Phoebe!!! Keep on fighting and we keep on praying!! God loves you soooooo much and he´ll take care of you!! You are “our” little girl too LOL
    Chris and Lulu

  12. Thank you for this beautiful message……..It’s a happy tears moment. I’ll just keep on praying and you keep trying Phoebe-ster. Big ((HUGS)).

  13. Oh my so Precious!!!! Please give Phoebe a big hug and kiss from the Blow family. We will continue to pray without ceasing. We love you all, Your Va family 🙂

  14. Thank you so much, Phoebe, for your beautiful message. It has lifted our hearts to see you fighting and becoming stronger every day. There is not a moment during the day your are not in our prayers. We love you and again thank you for showing what prayer can do. God Bless you and your family, sweet little girl.

  15. Oh Phoebe, that was so precious!~ I love you too and pray for you all the time! I have your pic on both my computers and setting on my work desk too!!!!! Keep getting strong and smilin’ that beautiful smile!~ I love to see your progress everyday! (((BIG HUG))) ~ Marcy ~ 🙂

  16. You are so beautiful sweet Phoebe! I am so glad we have a God who hears us! Praying for you and Mommy and Daddy and your brothers and all who love you! Hearing your voice made my day!
    Happy tears here in Christiana, Pennsylvania. God bless you dear one, Chrisy Weaver

  17. Oh what a sweetheart!! Thank you for sharing this with us. It really means a lot to me. 🙂

    Phoebe you are a special, sweet doll. Hon, you keep fighting and we will keep praying and praying.

  18. How precious!! Brings tears of joy to our eyes! We’re praying daily and thank God for all of his marvelous answers. We love you.

  19. Precious brave little girl. Our prayers won’t stop! We can’t wait to follow up these prayers of pleas with prayers of thanks. All in His time.

  20. What a precious girl! I love you, Phoebe, and will of course continue to keep you in my prayers. God bless you, precious Phoebe.

  21. “Yea though we walk through the Valley of Death, He really does cause us to fear No evil.”
    Dear Phoebe,

    Tears of praise well up in me, in all of us who read your words from your bed. Be blessed,
    as well as your dear parents.

  22. Phoebe you are such a miracle. People across the world are praying for you. I can’t wait to see the post of when you get to go home with your mom and dad and brothers.

  23. Thank you Phoebe! What a brave girl you are & we are so proud of you!! God is continuing His healing in your body….Our continued prayers….Dwayne & Carole Neal

  24. Bless you Miss Phoebe. You melt my heart. Keep working hard so you can go home for a little bit. Everything is always better when you can be with family and in your own bed.

  25. Oh my goodness….I shouldn’t have played this at my desk. Tears…. Isn’t she the most precious baby you’ve ever seen in your life? I just want to kiss those sweet little cheeks. I’ve been in Sweden without access to Phoebe’s updates… What a great way to return. Oh what can happen in just a week. We love you guys!

  26. Ms. Phoebe you truly are a Miracle Girl! My prayers continue for you and your family, and I know that God will continue watching over you all.

    There is no place beyond His strength…
    no boundaries to His love…
    no limit to His mercies…
    no problem outside His solutions…
    no need beyond His care

  27. Oh Phoebe, I love you!! That was such a precious little video. Wish I could give you a big hug! I look forward to hearing from you again. You are always in my prayers!!
    Thanks Amey & Nathan for sharing your baby girl with us.

  28. How precious! Thanks so much for sharing that little bit of Phoebe with us. My thoughts and prayers continue to be with all of you daily.

    God Bless,

    Janet
    COLE’S Prayer Team

  29. I am Mema to some pretty amazing grandkids. You would qualify as one. My grandkids have to be sturdy, wise, robust, energetic, impatient, inquisitive, trusting, hopeful and best of all, loving in heart and spirit. You can call me Mema when we meet, dearest child. Until then, you think about Running, walking, playing, kissing Mommy and Daddy, making mudpies.Give Jesus a big kiss and tell him you’ll be back later.

  30. So adorable!!! I will continue to keep Phoebe and her family in my prayers! Praising God for all the steps forward along the way!

  31. Precious and brave Phoebe! So good to hear her voice! I have been following your triumphs, fears, struggles, setbacks, & improvements, but most of all the Love of a family and the strength of a family rooted in Christ! You have been and will continue to be in our prayers.

  32. Hey this is Toby’s mom at parkland hospital. It was a pleasure meeting you. I’m so sorry that we could talk longer while you guys were here. My thoughts and prayers go out to you guys and your family. I will also be praying for your wonderful work as a missionary. If you guys need anything email me and let me know. Please keep me informed on your daughter. Hope everything continues to progress. It was a pleasure meeting you guys. You have a wonderful little boy. May your recovery be speedy and rapid.

    The Tucker family

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