Phoebe begins round 3 of her protocol tomorrow. I dread the oncoming days..watching her skin break down, the vomiting, the lethargy, reading the print-outs showing that her neutrophils are diminishing. Lord Jesus, please let this go well.
She had a wonderful day with her Daddy and her Mammaw. She colored, sat in her stroller, had physical and occupational therapy, blew bubbles. They do not think she has pneumonia, only that the spot on the x-ray is a tiny area of collapse because she is so weak and not expanding her lungs in full. The extra oxygen has been what she needed to bring her heart rate down and stop her body from feverishly working to breathe. She is also receiving a “just-in-case” seven day dose of antibiotics.
The next four days she will receive her chemotherapy infusions and in 7-10 days her blood counts should be down to zero. If she tolerates the chemo well enough and her sodium is level and maintainable at home, we will get to bring her home at the beginning of next week until her next round. This hasn’t happened yet, the stabilizing of the sodium levels soon after chemo, so I will not be in any way surprised if it doesn’t this time.
I don’t have many words tonight, just a fragile feeling and the bracing-myself type of dread that comes the night before a new round of chemo. Please pray for Phoebe. I know you are, and I thank you. I never rightly know where to thank people individually. In my former life I would have sat down and hand-written thank you notes, but time and energy fail me. So, please, to all of you who beseech the Lord on Phoebe’s behalf, who pray for our family, who make beautiful blankets, and send “I Love Neutrophils” t-shirts, to those who send generous donations for Phoebe’s care, and those of you who send cards and letters of encouragement, to those who send books and cancer information and resources, and those who make and send delicious home-made food, those who come to photograph Phoebe and our family, thank you, from the bottom of our hearts, thank you! You uphold us, you lend us your strength and walk the extra mile with us.
Holding on to the hem of His garment tonight, ~Amey