Apr12

Please Pray!

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Urgent prayer is needed for Phoebe, Nathan just called to tell me that she turned white and her oxygen and blood pressure dropped. She is being moved to the ICU and that’s all we know right now. She is neutropenic right now which makes her very vulnerable. I will update again when we know more.

~Amey

Filed under Uncategorized | 22 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

22 responses »

    • Prayers on the way for ALL of you, Amey. Keep us posted when you have time and not until! 🙂
      Prayers that God’s angels be with you and your mom as you travel!
      HUGS,
      Peggy

      Reply ↓

  5. Lord Please hold Phoebe in your arms and give the doctors the knowledge to know how to treat this presious little child. Keep her out of pain, at peace and please Lord heal her little body so that she can continue to be a testament to you.

    In your loving hands, Amen

    Reply ↓

  6. Praying so hard for Phoebe right now. Please Lord, just keep your healing hands on her right now! Help Amey and Nathan and the entire family get over this hurdle.

    Reply ↓

  8. Amey and Nathan, I believe this story – this experience, this trial with Phoebe and your family – is so much greater than what it may appear. I just read your “about me” page and I was touched by the part where you wrote that the Lord spoke through Phoebe in saying that she is A Miracle. I am physically far removed from your family and your trials but I am a part of it, as we all are, as One Body in Christ, one unified family of believers. The Lord’s miracle through Phoebe will touch so many and will be a constant reminder in our love for one another and in God revealing his Love for us every hour of every day! I will continue to pray for Phoebe, your family, and all that are touched and changed by this Miracle.

    Reply ↓

  10. Praying hard for this sweet Angel . . . praying for the doctors to find a quick solution to the problem . . . praying for the entire Fair family.

    Reply ↓

  18. Joining you in prayer that the doctors will know immediately what to do about this…..praying for peace for you as you have to wait for answers.

    Reply ↓

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