Apr14

!!

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Guess who had a GREAT day today in the playroom and going for walks on the Oncology floor?

And….guess whose NUETROPHILS made an early appearance??

Immune system reporting for duty! All good news here today! Let the wild rumpus start!

~Amey

Filed under Uncategorized | 28 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

28 responses »

  7. Praise God for his mercies are new every morning!!! She looks wonderful, and I must say Nathan looks good with his headband too!! :- D What a wonderful day for wonderful news…Thank you Father God for answering our prayers!!!

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  10. So very happy!! Great picture!! You can see it in her face. Glory to God and we continue to pray for complete recovery.

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  14. Yippeah yeah – give her more Lord! And send us more pictures! Just getting up to start the new day -couldn’t be better! Thanks for the pics -we do have bunny ears that blink – does Phoebes blink too? Than we would request a video! We keep praying!

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  18. Awesome news with her immune system kicking in earlier than expected – what a blessing! Love how dad got into the hair bows too – she is beautiful with the ears on too! Continiuing to pray for you all!

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  19. Praise be to God! How wonderful to see that beautiful face and smile. My heart overflows with happiness. May the blessings continue.

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  20. I always wondered which side boys wore the flower on. Thanks, Nathan, for clearing that up! Boys on the left, girls on the right. (Way to go, NEUTROPHILS!)

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