It was a good weekend. Phoebe is doing great which always makes it easier for me to leave the hospital and really feel at peace at home when my Mother-in-law comes to stay with her on the weekends. My Mother-in-law Sarah, is a professional at taking care of people. I remember the week after Deacon was born, I was recovering from a c-section and suddenly Nathan and myself as well as Ben and Averic were totally knocked off our feet with the flu. Grammy to the rescue! She came over, cleaned up vomit, changed sheets, did laundry, took care of my 1 week old and myself, was up all hours of the night going from boy to boy, getting cold Sprite, putting cold washcloths on little foreheads…amazing. She was a lifesaver then, and she is now.
I don’t know how we’d do this without our Moms. Each week they come to take shifts with Phoebe to relieve us and make it possible for us to be at home with our boys. They have both learned along with us how to guage sodium levels and detect the signs that mean she is ready for her DDAVP shot. They change scary diapers at 3 am and have parties with Phoebe til the sun comes up, faithfully text me with updates at odd hours and then go home and work. If this exhausts me at age 35, I know it exhausts them being so old and all. *wink* Really, we have some pretty awesome Mamas and Phoebe won the Grandma lottery.
Benjamin is spending the night with me and Phoebe tonight. He has been begging for a while and I finally felt like we were at a place where he could. I brought all of his school work for tomorrow and he decided to get a head start and tackle Bible, Grammar and Reading this evening so he could have a short day tomorrow. He did a great job of entertaining Phoebe tonight. In fact, I think the energy level of a 9 year old is much better suited for this type of thing than mine. He blew bubbles, did silly dances that got her giggling, watched Veggie Tales with her, snuggled…I love seeing her brothers love her. And I love that home education affords our boys time to be with her.
Phoebe looks more like herself than I have seen in a while. She is now weaned off the Valium and almost completely off the Methadone and she looks so clear. She got to have her port de-accessed tonight and have a real bath in the bathtub. She LOVED it. The little bugger turned into a prune, she stayed in there for an hour! She was laughing and washing her My Little Pony’s hair with shampoo, pouring water in a bucket and having a grand time all around. It was tough talking her into getting out. Who would have thought that a simple bath would become a highlight of our lives? I use to rush through baths to get the babies in bed for some quiet, tonight I pulled up a chair and just watched for an hour. She’s so precious.
If all continues to go well, we’ll get to take her home on Tuesday! We are feeling so relieved that this round of chemo went so well and are looking forward to having her home again.