Phoebe is struggling with global (all over) neuropathy that is thought to be caused by one of her chemo medicines called Vincristine. Vincristine tends to cause neuropathy in the hands and feet, but Phoebe’s case is atypical because it has also caused extreme weakness in her diaphragm making it difficult for her to breathe. A few other causes have been considered, but for now we are holding the Vincristine from her protocol and praying that her strength returns. The bi-pap machine has given her some improvement, but she has a long way to go. In this video she is trying to learn how to walk again and having fun doing it.
Her perseverance and spirit are infectious! Having never met Pheobe I am honored that you share your beautiful gift with us. I will continue to pray for Phoebe and your family
She is precious!!!
Love it!!! Made my Day!!!!
I ditto that comment. I hang on every day for word of Phoebe’s progress and new pictures and videos. Thank you so much for sharing with us, though we seem to be strangers, we are family! God bless you and continued prayers and praises!
Oh, so sorry to hear this. In my prayers daily.
She is a doll. One day at a time. One problem then another yur faith is amazing.
You are looking good, sweet little girl! A woman at church told me about you the other day, and she prays for you and so will I! God bless YOU, and your family! Keep fighting, sweet little girl!
Please know that you and your family are not alone in this battle. Although you may not know each one of us, WE are standing beside you. Your writings are such inspiration to all of us. Your straight has given many hope in more way than you can imagine. Thank you for sharing Phoebe’s journey with us. I too, look forward each day of hearing about Phoebe’s progress. May God continue to Bless you and your family.
So sweet! Praying for you Phoebe.
She make the lite gait look good! Way to go little lady. Always in my thoughts and prayers. Kelley
Go, Phoebe, Go! She’s amazing as usual. 🙂
Miss little Miracle is so atypical at all! Glad they found it out what the reason is and can prevent further damage. Phoebes spirit is up so high that I am sure she will gain her strenght back. One step after step and time by time. Praying for the second round of home vacation! And we pray today for the medical stuff to gain more wisdom and blessing!
So so precious she is!!! She looks adorable walking and you can tell she feels good about it, like a big girl. Wow- I shared it with people at work and were all praying for her and shedding happy tears. Will continue praying and fighting right along with you Phoebe!! We love you!
Thank you so much for sharing the videos and pictures! I LOVE seeing Phoebe and it helps to have a face to know exactly who you’re praying for. Continuing to intercede for you, Phoebe, and your family!
My heart smiles watching her relearning to walk =)
Praying and continuing the journeyy with you all. XO