Round 4 Begins Tomorrow

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Here is Phoebe Lu out on the town this weekend!

 

We have had a wonderful week at home as a complete family! I will post more pictures of our time together in my next post. I will say that administering meds all night makes me appreciate our nurses all the more!  Tomorrow morning we head back to the hospital for round 4 of chemotherapy. She will have her spinal chemo injection around 11 am and we will be admitted to the oncology floor for treatment. Please pray for another smooth round of chemo. It was such a blessing to be able to take Phoebe home for a week and I am praying that we get a repeat this time around! Thanks for loving our girl and being a part of our journey.

~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

18 responses »

  1. Praying hard for Phoebe to have an easy uneventful round of chemo this week …. Hoping she tolerates the medication well enough to make another trip home!

  2. Praying praying praying Phoebe! Praying for another smooth chemo, healthy numbers to return quickly and an immune system that fights right along with you. Glad the week went so well -must have been amazing times together! Love you Phoebe!!!!! Will be thinking of you…

  3. Glad you had such a wonderful and precious time together! We will be praying for a smooth (as it can be) round 4.
    Give the styling queen a hug – she is great!
    Chris

  4. Nathan, You guys are still in my prayers. We had a course last week and I thought of you Nathan. I praise God for how strong you Amey and Phoebe have been. You guys are my heroes. Amey you are strong and amazing. You are right someone else always carries a heavier yoke. You are wearing yours superbly. Am praying for a good smooth round of chemo, if chemo can be good. You know what I mean. Nathan the aquarium in Dallas had lots of Pacu. The big pirhana looking fish. That is the fish we raise in Bolivia. When Phoebe gets well enough come see us out here in Paint Rock. We can take your boys fishing. We are praying. Phoebe is greatly loved by all even by those that don’t know her.

  5. Sooooo glad you had a great week with all your family together!! Praying for everything to go well with this round of chemo, with no side effects or problems of any kind. Miss Phoebe looks so COOL in her shades!!

  6. Praying as Phoebe goes back to the hospital. Praying for His complete Healing and recovery while thanking Him for the Miracle he has already provided to Phoebe. so Happy you all had her at home for a while. Hugs, Marilyn

  7. I am so praising God for her week at home! And asking for an even less complicated treatment this time! God Bless you all!

  8. Praying for all of you! We serve an awesome God! So thankful you guys and gals had a GREAT week TOGETHER!
    *God is Good*

    Sending Hugs from Blacksburg, SC.

  9. Amey,
    The pictures truly did tell a thousand words of a story. I’m so glad you got to have Phoebe home for a really good visit. I know it was good for the boys too. Praying for another good round of chemo! (is that an oxymoron?)
    Kay

  10. Thank you for letting us join the journey with you so that we can pray for Phoebe and your family. I find it an honor to be able to pray for you all and it’s hard not to love her at all, she is so easy to love and so are you and your family!! God bless!!

  11. I am so glad you guys had this opportunity to be with Phoebe in your own surroundings. I know you all had a great time together. Blessings to you all. God is good!!!!!

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