It’s been another “mixed bag” kind of day, but I am ending the evening feeling blessed just looking over these pictures from our last week at home again. This morning Phoebe had her hearing tested and for the first time her test results showed that she has some high frequency hearing loss caused by a chemotherapy drug she receives called Cisplatin. It was sad to sit in the same room with her and hear sounds that she didn’t. I am told that this will not likely affect her speaking ability, but will probably make it difficult for her to hear sounds like “ssssss” or “ttt”, rather than lower tones. We are not altogether surprised, as we were warned that this particular drug causes high-frequency hearing loss, just a little saddened for Phoebe. She will receive Cisplatin again this round of chemo but at a 50% reduced rate. And I would take hearing aids over cancer any day.
After her Audiology test we went to the Oncology clinic and she had her port accessed and labs drawn. All of her numbers looked good and they commended us for a great job maintaining good sodium levels with her DDAVP shots. After the balancing act of all those meds for a week, it felt good to know we were on top of things and she was doing so well. I felt like I had passed a big exam with flying colors!
She wasn’t very excited to be back at the hospital and asked to “go bye-bye” several times. I ached for her because I knew she was feeling anxious and sad about being here. She perked up when we got to her room and I mentioned eating. She has been taken off food restrictions and can now eat whatever she wants! She had 2 bites of spaghetti, some applesauce and some milk and she was thrilled! It was just a little, but it’s a start.
She lookes so good, doesn’t she!? Her strength is improving each day, her breathing is much better, her silliness is back….I am just beaming inside with how great she’s doing and how far we’ve come in just a few weeks.
Tonight her chemotherapy infusuions start and will run over the next four days. If she tolerates it as well as she did this last round, we will be looking at another week at home in about a week or so. In 2 weeks she will have an MRI to check for tumor, and those days are always nerve-wracking. But for now, all I feel is hope and an expectancy of good things. It was a magical week at home and we are praying that she comes through this round of chemo just as beautifully.